Aug 14, 2015

Father had to leave salaried position

J was diagnosed with bilateral retinoblastoma (cancer in both eyes) in August 2013, aged only 3 months. So far he has undergone the removal of one eye and 6 cycles of chemotherapy.   His treatment also requires laser and/or cryotherapy directly to tumours in his remaining eye.

During this time J's parents have had to make numerous and frequent visits to three different hospitals:

The Royal London Hospital for regular examinations under anaesthetic and any local treatment he requires.  These visits will continue until he is approximately 5 years old.

Great Ormond Street Hospital for insertion of a central line that will deliver chemotherapy and also for treatment for any side effects this invasive but potentially sight and life saving will have on him

Harlow Hospital for admissions when unwell during chemotherapy and prosthetic appointments for his artificial eye. 

Although J's parents are not in receipt of benefits, his mother was originally receiving maternity pay, which has ended. She will be returning to work on very reduced hours because of J's condition and the potential for ongoing unknown need for further treatment, as well as regular examinations under anaesthetic. 

J's father has needed to use all of his annual leave and take unpaid leave for J's hospital appointments and stays. He has had to leave his salaried position and work on commission only due to the need for him to take time off work so frequently.   This has had a significant impact on the family's financial position.

Through the generosity of its supporters and donors like yourself we are able to help ease the financial burden just a little for families with children undergoing treatment for cancer. We would like to do this every year a child is in treatment but we simply don't have the funds.  Please help if you can. Thank you.

To find out more about our work subscribe to our CHECT blog.  


May 26, 2015

This is Alex's story

A huge thank you once again to everyone who is supporting our appeal.  On average a child a week is diagnosed with Retinoblastoma (childhood eye cancer) and we are here to provide emotional and  practical support as well as a little financial assistance when it is needed the most. Since we launched our GlobalGiving page in late November already your support has made a big difference to ten families - just like Alex's below.

Alex was diagnosed with the type of eye cancer that is heritable, which means he can pass on the cancer gene to his children.  Not that Alex thinks much of that as he is only 15 months old.

It was in March this year  that Alex's family heard the dreaded words that no parent should have to hear "your child has cancer".  Alex lives in Scarborough, UK which means that he and his family have to travel to Birmingham Children's Hospital every 4 weeks for Alex's eyes to be examined under anaesthetic.  On top of these examinations he and his family also regularly travel to Leeds so Alex can have lifesaving  chemotherapy treatment.

Alex's mum stays at home to care for him  and his dad works 16 hours a week - the family have already travelled over 4,000 miles for treatment - and a family with a child with cancer shouldn't have to worry about how they are going to get to the next treatment. 

Feb 24, 2015

This is Jack's story

Jack was diagnosed with eye cancer in both eyes at the age of 2 and has had lots of different treatments over 18 months. Jack's had one of his eyes removed to save his life and has very little vision in his remaining eye. Jack has relapsed several times requiring radiotherapy, laser and cryotherapy at which time Jack is very susceptible to other infections and is often quite sick, which means the washing machine is on daily because of the clothes and sheets that need changing.  Jack's treatments take place at two different hospitals and every three weeks Jack spends a week in hospital during which time Jack’s mum needs extra childcare for her other children. You can imagine the amount of travelling Jack’s mum has to do to get to and from the hospitals and the overnight stays which has added £400 extra on her monthly outgoings.

I'd like to tell you that Jack's story isn't typical of what our families go through when they have a child undergoing treatment for eye cancer - but it is.  This is why we need your help to donate to CHECT's support fund so we can continue to give a little financial help to families when they need it the most. 

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