IMPACT Project Report- March to May 2016
Project Name: Run an 85-bed child cancer ward in India
Project ID : 19108
Story of a little baby girl who fought a solid tumor
Name : Yamini
Age : 2 years
Diagnosis : Wilim’s Tumor
Place : West Godavari, Andhra Pradesh.
Family Background :
Yamini is a two year old child. She hails from West Godavari district of Andhra Pradesh. Yamini’s father is an Auto driver and mother is a house wife. Yamini is the only child to her parents.
Yamini was just 9 months old when she had initial bouts of stomach pain. Her parents showed her to a doctor in a private hospital and took the medicine prescribed by the doctor. This helped in reducing the stomach pain and the child was doing ok. After a few days Yamini’s mother found a tumor in stomach while bathing her. Parents took the child immediately to the private hospital. Doctors suggested getting CT Scan which revealed a tumor near the kidney. Doctors informed the parents and asked them to admit Yamini in Niloufer Hospital in Hyderabad for better treatment.
In Niloufer Hospital Yamini underwent investigations like CT scan, X-ray, CBP, LFT/RFT and other tests. Doctors checked all the reports and then performed a surgery and removed the tumor near the kidney. Biopsy was performed for the tumor. After checking the biopsy report, doctors in Niloufer referred Yamini to MNJ Cancer Hospital for further treatment. Finally they reached the IMPACT children ward in MNJ Cancer Hospital. In MNJ Cancer Hospital medical oncologist examined the patient and suggested all investigations for the final diagnosis. Upon all investigations and after reports pediatric oncology doctors confirmed that Yamini has Wilims tumor.
After confirmation of diagnosis, oncologist explained Yamini’s condition and prognosis and about cancer disease to her parents and immediately started the treatment for Wilims cancer.
Yamini completed chemotherapy successfully with the support of pediatric oncologists, IMPACT nurses and counselors. Now she is under three month observation.
In the beginning Yamini’s parents were unable to grapple with the harsh reality regarding their child’s condition. They could not accept that their child has got cancer - a deadly disease. Yamini’s parents had a lot of doubts about the prognosis and were very afraid of the side effects of chemotherapy. Doctors and counselors explained to them about the side effects and disease management.
Yamini’s parents had to shell out a lot of money in private hospitals during the early days of treatment. They had to sell their property in order to pay for the treatment and investigations in private hospitals.
Counselors have given emotional and moral support to Yamini and parents to cope up with the stress and trauma.
Now Yamini is very active in the ward and her parents are so very grateful to the Oncologist and IMPACT staff because they helped their child complete the chemotherapy successfully with minimal side effects.
Quarterly Status Report
During the period of Mar 2016 to May 2016, a total of 1506 children have been treated for cancer.
Out of which, 120 children were in-patients in the IMPACT ward.
Brief summary of activities
Children benefited from our Transport Support are 72.
Camps were conducted, one in the month of March and in the month of April, 2016.
Totally 451 children got benefited with FREE BLOOD.
Hygiene training was imparted to parent/caretakers of children
Conducting every day Classes to kids for refreshment and Entertainment program.
Medicines were procured and administered to several needy children.
Medicines administered include the following
Events during the Quarter
IMPACT Project Report- Dec 2015 to Feb 2016
Project Name : Run a 70-bed child cancer ward in India
Story of little brave heart - Kiran
Name : Kiran
Age : 5 years
Diagnosis : HDL Cancer
Address : Peddatupra, Shamshabad
Kiran is a five year old boy going to Kindergarten in a small village in Rangareddy district. His father works as a laborer and his mother works as a daily wage agriculture worker to make both ends meet.
He has one elder sister studying in 4th class.
Kiran’s family is economically backward and is living hand to mouth.
Kiran was suffering from fever and so his parents took him to a local hospital in their village. But even after taking medication, his fever persisted. After few days Kiran’s father had observed a small lump on his neck. Suspecting something serious, they immediately visited a private hospital in Shamshabad where he was checked and was then referred to Niloufer Hospital in Hyderabad.
In Niloufer Hospital , Doctor checked the child and prescribed investigations like CBP, LFT & RFT, X-ray & FNAC. Doctors then studied the reports from investigations and referred Kiran to MNJ Cancer Hospital in Hyderabad suspecting of cancer.
In MNJ Cancer Hospital, medical oncologist saw the child and prescribed few more investigations including CT Scan & Bone marrow etc. Medical oncologist then studied the reports from investigations and finally confirmed that the child has HDL cancer.
Kiran was admitted to IMPACT pediatric oncology ward and has been assigned to an IMPACT Counselor.
Psycho Social Issues:
Kiran’s parents were very worried when told about cancer and could not come to grips with the harsh reality of the disease and its prognosis. They had lot of apprehensions on how their child would cope with the treatment.
Moreover his father had to leave for home town to take care of his sister and work to be able to meet the financial needs. While father was facing financial burden, mother was facing the emotional burden of taking care of Kiran all by herself in an unfamiliar place and situation.
During the initial phases Kiran was very weak and he was unable to stand and walk after chemotherapy. Upon proper diagnosis and medication by pediatric oncologist in IMPACT Kiran has become strong and his health condition has become normal.
Current Status :
Kiran has successfully completed the chemo treatment and his health condition has become normal.
Now Kiran’s parents are very happy and relieved that the treatment is completed successfully without any problem and are profusely thankful to pediatric oncology Doctors in the ward.
Kiran wants to go back to school and study well to pursue his dream to become a Police officer.
Quarterly Status Report:
During the period of Dec 2015 to Feb 2016 , a total of 1584 children have been treated for cancer by IMPACT in MNJ.
Out of that, 84 children were in-patients in the IMPACT ward.
Brief summary of activities during Dec’15-February 2016
1. Transport support
54 children benefited from our Transport Support
o 20 children were benefited during the month of Dec-2015
o 19 children benefited in the month of Jan-2016
o 15 children got benefited in the Month of Feb-2016
2. Blood Donation Camps
Two camps were conducted in the month of Dec-15.
3. Blood Products Support
o 153 children got benefited during the month of Dec-2015
o 130 children got benefited during the month of Jan -2016
o 50 children got benefited during the month of Feb -2016
4. Hygiene Program / Support
o Bed side cleaning
o Hygiene boxes, Masks and sanitizers were distributed
o 19 children got free medicines in Dec-2015
o 22 children got free medicines in Jan-2016
o 24 children got free medicines in Feb-2016
6. Volunteering Activities
Birthday celebrations of children In IMPACT Ward.
Aashri Society visited IMPACT and donated cakes, snacks and entertained all children.
Kamala Group visited IMPACT and entertained the Kids.
Dr.Maduri And Group visited IMPACT and donated snacks for kids .
Oakridge School visited and distributed Hand Towels, Drawing Books & Pencils.
Rotary Trust visited IMPACT and distributed Ice Creams and entertained the kids in the ward.
IMPACT Project Report for September to November 2015
Story of Shiva :
Name : Shiva
Age : 13 Years
Diagnosis : Blood Cancer ( ALL )
Address : Peddapuram, East Godavari
Shiva is a thirteen year old boy hailing from East Godavari district. His father pulls a rickshaw and his mother works as a daily wage laborer to make both ends meet.
He has two siblings, one sister who is married and one brother studying in tenth class. Shiva is youngest of the three. He is currently studying in seventh class.
It all started with an eye infection for which Shiva’s parents took him to a local private hospital. After checking his eye, doctor prescribed few medicines and there seemed to be some improvement initially but few days later the infection and pain resurfaced.
To seek a second opinion, Shiva’s parents took him to another private hospital and consulted a doctor there. He was prescribed another set of medicines and even that did not work unfortunately. It is already six month since the pain started and Shiva continues to suffer with pain.
Leaving no stone unturned, Shiva’s parents took him to another hospital where they in turn referred him to a well equipped hospital in the town - Kakinada Private Hospital, where doctors suggested thorough investigations like CBP, LFT, RFT and X-Ray. Doctors then studied the reports from investigations and referred Shiva to MNJ Cancer Hospital in Hyderabad suspecting of cancer. Shiva’s parents did not waste any time and immediately headed to Hyderabad to admit him at MNJ Cancer Hospital.
In MNJ Cancer Hospital, medical oncologist saw the child and prescribed few more investigations including CBP, LFT, RFT, Blood grouping & Bone marrow etc. Paediatric oncologist then studied the reports from investigations and finally confirmed that the child has blood cancer (Acute Lymphoblastic Leukaemia - ALL).
Upon confirmation of diagnosis, Shiva was admitted to IMPACT paediatric oncology ward and has been assigned to an IMPACT Counsellor.
IMPACT Counsellor firstly explained about child’s condition to his Parents. The Counsellor also explained the treatment process and protocol to the patient. After which a group therapy was conducted for the child and also for his companions. Shiva was made to understand the treatment plan and the duration. He had a lot of questions on his condition and Cancer. But after the group therapy he came to grips with the situation and also realized he is not alone his fight against cancer and that there are many other children fighting this disease.
When Shiva first came to MNJ hospital, his condition had deteriorated quite a bit and his parents were both physically and mentally exhausted and also financially depleted from medical treatment costs.
Shiva’s parents were in a shock when they were told about cancer and could not grapple with the harsh reality of cancer. They had a lot of apprehensions about the cancer and how their child would cope with the treatment.
Shiva says IMPACT counsellors Mrs. Sunitha & Mr. Meghnath were of great support in a completely new place and unfamiliar environment and made him feel comfortable.
Having understood the tribulations of the patient and his parents with regards to the costs of treatment and considering their financial background, IMPACT assured the family financial support for purchase of Blood Product and Nutrition.
Many a times Shiva slipped into deep sorrow, thinking about the disease and the risks/uncertainties associated with Cancer, but IMPACT counsellors empathized with him and helped him to overcome his fear by involving him various activities actives like drawing/painting and making him play with other children in the play room.
Shiva said the most painful moment of the treatment was at the time of bone marrow. But he said he will always remember the support he got from IMPACT staff and also emotional support from parents of other patients in the ward, especially parents of Rishi and Fazal .
Now Shiva is under treatment and his health condition is stable.
Future Plans of Shiva :
Shiva wants to go back to school and his parents want to see him in good health. During the course of counselling him and interactions with him, IMPACT counsellors have learnt about his aspirations and interest in computers, communication in English and also dancing.
IMPACT staff along with volunteers is trying to develop these interests in him while he is undergoing treatment and IMPACT is trying its level best to cure him completely over a period of time so that he can go back to school and pursue his dreams.
Quarterly Status Report :
During the period of Sept 2015 to Nov 2015 , a total of 1220 children have been treated for cancer .
53 children benefited from our Transport Support
3 camps were conducted, one in the month of Sept and two in the month of Oct 2015.
Totally 472 children got benefited with FREE BLOOD.
Medicines were procured and administered to several needy children
6. Volunteering Activitie
Events during the Quarter:
(Please see the attached pdf for pictures of events/activities )