Feb 21, 2017

Report 11 - Support For Kids Touched By Cancer

Two friends Liveta and Egle
Two friends Liveta and Egle

Over the winter season in December, January and in February our charitable foundation Mamu Unija has provided 72,173.00 USD of aid for children suffering from oncological diseases as well as support for their families. All funds have been allocated for obtaining non-covered drugs, nursing care items; these funds were also used to fulfil the biggest children's dreams and their birthdays. We would also like to express our gratitude to GlobalGiving donors who contributed to the aid by allocating 1,187.00 USD

5,522.00 USD worth of support has been provided to Laurynas, Domas and Maksimilijanas' treatment in Switzerland. Maksimilijanas had been to Switzerland (2 times), Laurynas – (1 time).

Domas went there last week for the 20th time in a row. Numerous cold and hot laser treatments, 25 anaesthesias, countless tears and sleepless nights and sinking heart, constantly sick with worry. Such are the days you have to endure when your child is suffering from an oncological disease. But today Domukas's mom Sandra is strong and she said “We have been given this tiny moment of happiness and we are happy with each little victory in our battle. I wouldn't wish such battles upon anyone. Each moment you feel joy is immediately darkened by another blow. However, you gather up all your strength and try to stay positive, because Domukas needs all of our help. He's a wonderful boy and he is going to win. Together we can do anything!”

We have purchased antifungal medicines for  923USD. These medicines were compensated for Ermin and Dimitrij's treatment.

We have provided 15,920.00 USD of social support over 3 months for 8 struggling families who have children suffering from oncological diseases.

In addition, over the period of 3 months, we have been constantly providing critical nursing care items (such as diapers, wet wipes, blankets), of which: diapers – 79 pcs., wet wipes – 41 pcs.; blankets – 30 pcs, other hygiene items (creams, shower gel, shampoos) - 24 have been dispensed accordingly.

We have purchased 13 highly needed functional beds for the Lithuanian Health Science University Hospital, Children’s' Oncology Department. These beds will help bed-ridden children reduce their pain. We have also purchased 15 air humidifiers for hospital rooms to help humidify dry air during heating season, as well as 2 perfusion pumps. We have allocated 2,788.00 USD these necessary items.

We have managed to fulfil 20 biggest children's dreams. Augustus’s mom was very happy and wrote “Thank you, thank you, Mamu Unija! We couldn't be happier. We can go outside everyday now, because Augustas's new stroller is so roomy and comfortable. Since our baby is unable to walk on his own, this was a highly needed item. I am sincerely grateful!” Over this period we had congratulated 56 children on their birthdays and had organised 26 different events ranging from the animation to climbing, nature photographers' and nitrogen shows!

This is our way of making the kids' treatment period happier and more entertaining, helping them learn new things and acquire knowledge. 

While our little Justas, who has been suffering from autoimmune disease for 5 years and as a result has lost usual abilities, has finnaly managed to make progress which is a source of immense joy to his family. His mom shares her joy with everyone: "At last my baby, my little pumpkin, my biggest joy and my pain in one, is able to squat. For some this may seem as a small thing, but for us this is yet another battle won, another box ticked in a very long row of boxes. When a child loses his ability to do the simplest tasks while other children are running around and climbing trees, the heartache is palpable. However, today we have one less heartache and one more night we can all sleep again. We still have many tasks ahead: running, riding a bike, getting healthy and stronger...” 

We wish that our little troopers and their families have strength to battle this disease as soon and as easily as possible!

We are also very grateful to our Global Giving donors for their kindness and help and for giving our children a chance to smile! 

Augustas biggest dream - new stroller
Augustas biggest dream - new stroller
15 air humidifiers for hospital rooms
15 air humidifiers for hospital rooms
Santa Claus visited hospital
Santa Claus visited hospital
13 highly needed functional beds
13 highly needed functional beds
Our princess Victoria
Our princess Victoria

Links:

Nov 23, 2016

Report 10 - Support For Kids Touched By Cancer

Austeja get tablet from her fairy
Austeja get tablet from her fairy

Charity fund “Mamu unija“ during September, October and November have collected donations of  159 692 USD for children, who suffer from cancer.

All the money was used for children’s not compensated medications, nursing measures, to compensate fuel for riding to hospital and back home. Also, 4 children were sent to Switzerland to cure eye cancer and for new project as well. “Child Oncology Help Center” (“Vaiku onkologijos pagalbos centras”) – is a project, which gist is a home, which is not in a hospital and creates home environment. This project is like a social phenomenon – home. “Mamu unija” initiated this project because we aimed to build up a home, which would be designed for a child, who suffers from cancer and his family, so they could live and spend their free time there. This home would help to create a secure, cozy and helping to heal atmosphere.

During three months, for the construction of this home we spent 135 416 USD.

We supported kids’ (Laurynas, Domas, Maksimilijanas and a new girl named Aiste) treatment in the clinics of Switzerland (17 608 USD). Laurynas and Domas traveled to Switzerland for two times, Aiste and Maksimilijanas – once.

We have got the good news from our Laurynas – who is treated in Switzerland. Boy’s mother Ramune says: “Laurynas is already after inspection and the news are great. The tumor is completely destroyed, inactive and very little – about 4 mm size. We hope it won’t recover. The greatest risk for tumor to recover is within half a year after the last treatment, so the professor will monitor us and then transmit to Lithuanian doctors for checking. Later, the risk decreases and if the tumor will be inactive for two years – cancer is defeated!”

Also, during these three months, we provided the most essential nursing measures: diapers, wet wipes, mats. We distributed: diapers –  70 units, we wipes – 90 units, mats – 100 units. We gave away other hygiene measures (crèmes, shower gels, shampoos): crèmes – 40 units, shower gels and shampoos – 20 units, vaselines – 25 units.

During the 3 months we wished happy birthday for 50 children, fulfill 8 children’s biggest dreams. One of the mothers shared some joy after the fulfilled dream of her daughter:

“When the smile appears to your face, daughter, it’s so easy and well in the heart. This is the first smile since Saturday. Even if you say that you feel good, I can see you are exhausted because of the temperature and nausea. However, today is different and we hope that this night and tomorrow will be the same, that the smile will adorn your face more often, that blood indicators finally will start to recover and will rise soon. WE are strong and we will defeat this disease with all the support and good thoughts. “

Also, our Austeja’s dream was to visit USA, we fulfilled this dream and she, together with fund manager Egle Melinauskiene, traveled around her dream country for two weeks.

It is worth to mention that in the Vilnius Santariškes Division and Kaunas Oncology Department on every Wednesday we organized 28 events:  we welcomed Olympic champion Ruta Meilutyte , played with physical principles and nitrogen, also baked pancakes with a 3D printer.

We want to thank all Global Giving donors, who help us to achieve our goals, fulfill children’s dreams and get well soon!

Laurynas
Laurynas
Kajus and his fairy , with his biggest dream
Kajus and his fairy , with his biggest dream
Olympic swimming champion Ruta Meilutyte
Olympic swimming champion Ruta Meilutyte
Playing with animations
Playing with animations
Party of the last chemotherapy
Party of the last chemotherapy
Child Oncology Help Center
Child Oncology Help Center

Links:

Aug 19, 2016

Report 9 - Support For Kids Touched By Cancer

Meeting with NATO soldiers
Meeting with NATO soldiers

In June,July and August our charitable foundation Mamu unija had provided

(EUR 142,105) (USD 161,147) aid for children suffering from oncological diseases. The foundation had purchased non-covered drugs and has provided nursing care items, had compensated travel, treatment, living and other expenses.

The foundation had allocated a sum of EUR 2,527 (USD 2,866) for families' trips to and from hospitals.

We had also provided social support for families in need raising a child suffering from an oncological disease. This support is granted in order to reduce essential expenses of living when one child falls ill with oncological disease and one of the parents becomes unemployed. This support is intended for food, trips to and from a hospital, to support other children in the family, to acquire hygiene, cleaning and other items, clothing and footwear, to attend to the needs of an ill child at home, etc. This type of support had already been granted to the families of Justinas, Erminas, Emilis, Viktorija and Joris – EUR 21,756 (USD 24,671) in total.

Laurynas, Domas and Maksimilijinas had been provided with further treatment abroad. We had compensated their treatment, nursing care and living expenses in Switzerland. Over the period of three months Maksimilijanas, Domas, Laurynas and AIste each flew to Switzerland for treatment twice. A sum of EUR 19,109 (USD 21,670) had been allocated to cover their travel and treatment expenses.

"We keep changing the bedsheets non-stop. After the bone marrow transplantation diarrhea persists“, "it hurts to even look at the mounth - it is full of mouth sores", "wet wipes would be a great help" - these are only a small part of requests we get from childrens' moms. Over the period of three months we had granted support to children for nursing care means: mouth sore medicine - 28, diapers 94 pcs., wet wipes – 68 , blankets 278 pcs. Other hygiene items (creams, shower gel, shampoos) - 16 dispensed in total.

Over this period we had congratulated 55 children on their birthdays and had organised 15 events "Goodbye Hair" - all of which had been attended by childrens' dream fairies wishing children to get well soon and fight their illness with their biggest smile. All children received their dream gifts.

Our fund had implemented the initiative to perform major repairs in accordance with the latest standards on three rooms in Vilnius Santariškes clinic, Department of Oncohematology of VU Children's Hospital. These twin rooms are equipped with oxygen and emergency systems. Childrens' beds are separated by a partition. Each room is equipped with a separate kitchen area with a fridge. These rooms are also equipped with a modern air-conditioning system and a separate shower. The room repair value is EUR 100,000 (USD 111,000).

We had also organised events for children that are held each Wednesday in Vilnius Santariškes clinic and each Thursday in LSMU Kaunas clinic (Hospital of Lithuanian University of Health Sciences Kauno klinikos). We had organised over 25 events on average over the period of three months. During these events children had an opportunity to meet the world's strongest man Zydrunas Savickas who inspired children and their moms to fight illness and never give up. Also children had a chance to meet the NATO officers. The little ones were also entertained by a magician's tricks, therapy water and sand drawing sessions, applied fake tatoos, built LEGO robots which, when later connected to power units, could move and walk. These are only a few of events that we had organised in order to help children be etertained, learn and improve.

We are sincerely grateful to all Global Living donors who had contributed to the support by allocating EUR 455 (USD 516 ).

We wish our little troopers and their families to never give up and overcome their illness as quickly as possible!

Emilis
Emilis
"Good bye hair" event
"Good bye hair" event
Austeja, Edvinas & Timotis
Austeja, Edvinas & Timotis
The strongest man in the world meets children
The strongest man in the world meets children
hospital ward before and after repair
hospital ward before and after repair

Links:

 
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