Dec 3, 2019

Report 21 - Help Lithuanian Kids in their Battle

About "Family home"
About "Family home"

Diagnosis - Cancer

Five year old Eivydas spent seven months in the hospital with his mother, Denas is in his three year hospital stay, seven year old Adas hospital is his home for a year ...

There are about 100 such children a year. 100 families a year hear a horrifying diagnosis - cancer. This diagnosis shakes the whole family and changes the lives of every family member. Moms, dads, grandparents are forced to make difficult decisions as they prepare for the difficult process of treating their child. The siblings are doomed to long, painful, difficult-to-lift divorces. When life gives us a little test and we are hospitalized for some ailment, after a few days we seem to be starting to press walls, lack of air, homes, loved ones ... We feel that in a more comfortable environment and surrounded by loved ones we can recover faster. Those who have not experienced it themselves have a hard time imagining the feelings and experiences of children with oncology, who are incarcerated in hospitals for months to years, and the challenges they face in the family. But this is well understood by Egle Melinauskiene, the head of Mothers' Union, who has overcome the disease herself and has been devoting her time and energy to helping children with cancer and their families for many years.

Family Home - an opportunity for the family to be with the family "Family Home" is a help center for families of seriously ill children, where all their loved ones can spend time with the patient. "Here we will drink tea, there will be a pool, here you will play basketball with my brother, and here we will plant vegetables ...", says Egle, showing the family home being set up for one of the patients. "With brother? Oh, so we can be here soon! ”, The boy is not happy. This home is located a few kilometers from the Children's Hospital of the Santariškes Clinic Branch of Vilnius University. The 2000 square meter building stands on a one-hectare plot. The building houses 11 mini-apartments, where the child will be able to live with his / her family during disease research and treatment. The family will have a 42-square-foot ward with a separate entrance and terrace. There will be a kitchenette, bedroom, toilet, shower, wardrobe. It is planned to set up art therapy and play rooms and a playground where sick children and siblings will spend time. The common areas will include a dining room, laundry, and a rehabilitation center. The Information Center, set up at Family House, will help parents provide information that their loved ones are sorely missing, especially at the beginning of their illness. This home will provide access to additional help from pediatricians, pain specialists, psychologists, clergy. They also think of children who are helpless in medicine ... Patients are being treated for palliative care ("butterfly") care. Once thought of as the practice of such a home in so many other countries, Family Home seemed like a utopia, later turned into a dream, and now it is a real project that does not take much to complete.

The project estimate is $ 2.5 million. euros. The project has already raised $ 2 million. euros. It is expected that during September, the remaining amount needed to complete the project - 300 thousand. euros. The project is audited and supervised by certified auditors and the public is provided with full information on the funds used on the project website. Family Homes are built on global best practices - Ronald McDonald's House operates in 58 countries, Family House (US), Sick Children's Trust (UK).

"Family home"
"Family home"
Pool
Pool
Room for family
Room for family
Eivydas
Eivydas
Friends
Friends
Waiting for "Family home"
Waiting for "Family home"

Links:

Dec 2, 2019

Report 19 - Help Lithuanian Kids in their Battle

Bernard in a hospital
Bernard in a hospital

Bernard's disease has returned. The boy regained his strength to fight the insidious disease.

Surgery, gamma knife, chemotherapy, radiotherapy - this is the path of the disease.

Bernard has undergone a genetic test that is very well suited to individual treatment.

The expensive study - 2662 eur, does not yet compensate the sickness funds and orderly in Lithuania.

It is a very good time for such people, because the disease is very aggressive, people's unity and family help.

We look forward to doing the genetic testing to better and better tailor your treatment and keep Bernard healthy.

During the months of November  2019, the support and charity fund Mothers Union provided children with oncological diseases, in Lithuania support for 60 500 euros.

We have prepared gifts that we will give to our children

every day until Christmas Eve!

 We decorated the hospital to give the kids the spirit of  Christmas!

Our little ones are thankful to you all! 

Christmas presents
Christmas presents
Christmas presents for children
Christmas presents for children
Hospital
Hospital
Presents
Presents

Links:

Oct 24, 2019

Report 18 - Help Lithuanian Kids in their Battle

Martynas
Martynas

Our funds were used to acquire non-covered drugs, essential nursing care items, for supporting children's treatment abroad and for funding their trips to hospitals and back, as well as for children's birthdays and dreams. Funding was allocated for the treatment of Martynas, Adrijus  in Switzerland.

Over the period of three months the trips to Switzerland were conducted as follows: Martynas travelled once a month, Adrijus – twice. Trip and treatment expenses were covered by a sum of 25225,69 USD.

 

This time, after Martin returns from Lausanne clinics, we share a letter from his mom:

"Hi,

It is urgent to rejoice that, after a month and a half of illness, Martynas has finally got rid of cough, angina and temperature. I also had some stress as I noticed changes in the Martynas long-term catheter implanted subcutaneously during bathing. We received an urgent referral to the Kaunas Clinics where the catheter was surgically removed due to displacement and unfit for further use. We thank dr. A. Kilda for the urgent operation. We are delighted that the latter has served us for a year and a half and greatly facilitated the work of doctors and associates, but recently the implanted catheter was no longer in use and simple, disposable were used.

The trip to Switzerland passed smoothly. After the operation, it turned out that a new tumor under the eye had been treated. Of course, the news is not the worst, but not as good as we expected. We still have hope for recovery and we believe in the doctors, their work and their dedication to the profession.

The next trip to Switzerland is scheduled a month later.

Greetings everyone from Martynas! "

FIRST TRIP TO SWITZERLAND

Little Adrijus today (2019 10 10) embarked on the first major and very important journey of his life - treatment at pediatric clinics in Lausanne. A few months ago, at just 1.5 months old Adrijus was diagnosed with a rare oncological disease, retinoblastoma (a malignant eye tumor), which is rare in Lithuania.

After the plane landed at Geneva Airport, Adrijus and his mother were met at the airport by Swiss Lithuanians, who willingly agreed to help with their medical trip.

A little bit of tension because everything had to be a little different. Swiss medics changed their treatment plan after Little Adrijus examination and cheered us on the good news. There was an urgent need to change family return tickets. And here again, the goodness of the people triumphs, and in just a few conversations about a small person, people who are united in a team and live in different countries.

Well, this time the experience of a short trip to Lausanne clinics is shared by Adrijus mom:

„Hi, I know you are looking forward to seeing what's new here. So, I hurry to write down everything.

Yesterday was an consultation with an anesthesiologist and prof. Munier's assistant. Explained what might be done, why some treatment might be needed.

An eye examination with anesthesia was ordered today. And after that everything had to turn out. That's it.

Good news

Adrijus will not need chemotherapy at this time. Now laser treatment has been done. Left eye completely healthy and clean. She sees one hundred percent. There are three tumors in the right eye, but the right eye also sees it, only weaker. Because the eyesight is not the same, you will need to put a patch on the left eye to develop and strengthen the right eye.

The expenses amounted to 2.874,77 USD .

Additionally, over the period of three months we had been providing essential nursing care items (diapers, wet wipes, and covers) and dispensed: diapers – 40 pcs, wet wipes – 45, covers – 90. Other hygiene items (such as cream, shower gel, shampoo): cream – 30 pcs, shower gel and shampoo – 20.

For families whose children are treated in Vilnius University Santaros Children’s Hospital and in Lithuanian University of Health Sciences Kaunas Clinic we also provided support and organised events. During these events we presented items for the use in the children's activity room – 30 learning games, new children's clothes, 50 big boxes of fruits for all children in the hospitals, 30 pizzas.

We also celebrated birthdays of 35 children. Our efforts are dedicated to making kids' hospital days easier and brighter and for making them happier.

As always, we traditionally wish children health!

We would like to express our gratitude to all Global Giving donors who are not indifferent to children's pain and are constantly supporting those who need those warm wishes and support the most.

Martynas
Martynas
Adrijus going to the Switzerland
Adrijus going to the Switzerland
Adrijus
Adrijus
Adrijus
Adrijus
 
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