Sep 26, 2016

Improved ADL of Ram

stretching exercise for ram
stretching exercise for ram

Greetings from Nepal!. Thank you all for continuously dona­ting to the children in need. We raised US $13058 till now, AWSOME! We hope we will achieve a “Superstar”, the highest level of partner of GG. This time we are going to participate in the “Little by Little by Little Campaign” which will be held from 29th Nov to 31st Dec 2016. Hope we will get support from you this time also as usual. We plan to raise at least $ 2000 for this event.

This time I’m reporting about the change in our children Ram (Name Changed).When he joined Patan CBR 5 months back, he was at the age of 8 years and was from a middle class family. He was born with vaccume delivery and did not cry while birth. He was born after a long delivery time of his mother than normal time of delivery.

When he joined, he could not walk properly even after the support from one person. There was a presence of more dystonic (Dystonia is movement disorder characterized by sustained or intermittent muscle contractions causing abnormal, often repetitive, movements, postures, or both. Dystonic movements are typically patterned, twisting, and may be tremulous) and ataxic (Ataxia is a lack of muscle coordination which may affect speech, eye movements, the ability to swallow, walking, picking up objects and other voluntary movements. A person with persistent ataxia may have damage in the part of the brain that controls muscle coordination - the cerebellum) movement while walking, tip toe gait, does not have right hand grip and has difficulty in speaking.

Immediately after he joined Patan CBR, we assessed him and planned the following activities:

Gym Ball exercise and reaching activities for the core muscle strengthening, from sit position  to stand position with walker, reaching activities for his effective hand functioning, bridging exercise for the core muscle strengthening, walking exercises like stepping on blocks with forward, backward and sideways, stretching tendo achilles, sole of foot deep massage, half kneeling, in prone alternate upper limb reaching and hand motor activities like gripping velcro exercise, keep botton and unbutton of shirt etc.

Our physiotherapist has to say regarding him “with the cooperation from his family and good effort and facilities of CBR he could improve his Activities of Daily Living (ADL) with very short time. I feel very happy to see the change in Ram”.

His grandmother who frequently comes in contact with us said “we are really thankful to the effort of Patan CBR with the improvement in his ADL activities, I felt regret for discontinuing his rehabilitation service at Patan CBR when he joined for the first time 3 years back. He was here at that time for the 3 months only”

Our Physiotherapy coordinator said” it is just because of the donors from GG which helped us in managing resources to continue our services to the marginalized”

We are happy to let you know a small improvement in his daily living activities. Now, he is able to walk with the support of one person’s hand. He has learned how to hold the hand while one give him hand to walk. Now, while walking, he walks slowly and dystonic movement has found to be reduced a lot. Also, he is able to hold object with right hand.

Now our future plan for him is to stand him independently, make indoor walk with walker and make walking independently, further improve the right hand grip, make him able to eat himself, make him able to dress himself.

reaching activity for Ram
reaching activity for Ram
Jul 8, 2016

Skill Training to family members of children with Intellectual Disabilties

Crystal Bangle
Crystal Bangle

Thank you very much for your contribution to our needy Children with Disabilities of Nepal. All together $ 13023 raised with 137 donations. Fantastic!, it all happened with your support. Now we are on the way to become a “Superstar” partner of Globalgiving. Hope for your continuous support during the days to come.

This time I’m reporting very new development in CBR. As majority of the children in Patan CBR have developmental/Intellectual Disabilities (ID), students from the skill development unit have been getting the skill training for a long time. In order to sharpen their skill, Patan CBR provided skill development training to the family members specially targeting to the mothers and single mothers of them so that the family members can teach them in case they forget. There is a need of repeatedly striking the mind of students of children with ID as they are prone to forget, the skill development to their family members help to keeping their skill remembered.

A three day training has been conducted to the single/mothers of children in which there were 8 participants. Seven are from the families and 1 is the student of the centre. Throughout the training they learn about how to make the ear rings, key rings, bangles, necklace, mobile covers all made from crystals. Parents are very happy to get such type of training so that they can earn by selling these products in the market and they can improve their intellectually ID children’s life to some extent.   

One parent expressed the view during the closing ceremony saying “Patan CBR did a very good thing by providing training to the parents of ID children. Now I can earn money even some hours of work in my own house and do not have to go to office and side by side I can care for my children. With this money, I can raise the quality of life of my children and will be able to pay in his school.”

Roshan (name changed), one of the participants from the skill development unit said “Thank you very much for Patan CBR for furnishing my skill capacity. I was searching for a job as my elder brother started giving his income to my mum but I could not. Now I can also earn and give some to my family”.

The program was conducted in cooperation with Sub Metropolitan City, Lalitpur.

Crystal mobile cover
Crystal mobile cover
Crystal hair pin
Crystal hair pin
Apr 11, 2016

Daily Living activities improvement

Crutch exercise
Crutch exercise

Dear All, Thank you very much for all of you for your great support to Patan CBR Organization through Global Giving (GG). Last time, during "Year End Fundraising Campaign 2016" you gave us some $ 2000. We are grateful for all these support. Now, our target is to become a Superstar partner of the GG. For this, we have to raise $25000. This results in obtaining various “Superstar” facilities provided by GG.

This time, we are happy to report a change in daily living activities of life of a disable child.  Binita (name changed), a child with mentally and physically disable, joined Patan CBR in 20th October 2014. When she joined us, she has difficulty in lifting her leg and difficult to walk even with the help of walker and her speech was also slurred. She could raise her feet very little. Her upper limb and lower limb both are weak. She was not able to climb stair.

We made plan accordingly, aiming to make lift her leg at 90 degree and to make walk with the help of walker. From November 2014, we started her exercise every day.  It is our great pleasure to let you know that she can lift her leg at 90 degree and can walk with the help of walker. Not only this, she can climb stair if we give support to one hand. Apart from this her socialization skill has also improved remarkably. 

Her father expressed the happiness that CBR day care centre has become increasingly important as more children are found to be improved in their social and daily living activities skills. He also thanked to all the donors of Patan CBR project and to Global Giving for their regular donation to the project. Also, he is happy that her daughter is more active and talkative than before.

Besides this, we organized a counseling program to the families of the children in 5-7 family members, concerned class teachers with an expert in the field of mentally retarded children, for two months. The main aim of the program was to interact about their problem and provide counseling about the behavior problem of the children developed with their age. Many realized that the way they are treating with their children need to be changed.

Parents, teacher and expert interaction
Parents, teacher and expert interaction
 
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