Dear PATS Supporters,
We want to wish everyone a Happy New Year! We hope that 2013 brought you joy and prosperity, and best wishes for the year to come. We couldn't have done it without you! In 2013, we raised more than $11,000 USD Gross (not even including matching donations from GlobalGiving or participating employers) from our GlobalGiving supporters, which included friends, family, and many supporters from around the world that we haven't met. We thank all of you for your generosity, it is with your support that we can continue on our mission to help our kids in China have happy, healthy childhoods.
Now for the update:
We have continued our regular calls between PATS Board member Dr. Jessica Haberer, and the PATS workers in China. Initiated in December of 2012, these calls are a time to discuss specific issues related to the children, such as possible drug resistance, changes in drug regimes or doses, and behavioral challenges with regard to medication adherence. The workers have been eager to continue with these calls and have benefited greatly from Dr. Haberer’s advice. In fact, Dr. Haberer has been a key advisor in determining the drug regime of a former PATS child (turned employee), who is HIV-positive and just had her first baby. With Jessica’s help we are happy to report that this baby- a little girl- was born HIV-negative!
PATS Profile - XueYan
XueYan is13 years old. She is regularly in a good mood although she is quiet and shy. Despite being a bit introverted she enjoys playing with her classmates and is overall a happy girl. She is living with her aunt and is thriving there. Sadly, XueYan's biological father is working in Shanghai and rarely calls home which is hard for her; however, her sister called during the Chinese New Year which was a source of great excitement. Her aunt's daughter is working out of town so she doesn’t get to see her too often either, but her aunt has a son who works nearby so he is a regular visitor. The PATS health workers report that this sense of family has been very important for XueYan and she likes it very much when her cousins visit.
XueYan's adherence with medication has been good, although she has on occasion missed a dose of her medication. The PATS workers understand that her new “mom” is new to caring for an HIV-positive child so they regularly refresh her mom’s education about the importance of adherence to ARV medications. They ask her to regularly remind XueYan to take her medicine, but she pointed out they don't sleep in the same room so sometimes it's hard to be diligent about the reminders. XueYan said she may forget her medication because she goes to bed early some nights and forgets to take her meds. The workers told her she needs to get her water glass ready immediately after dinner and she shouldn't go out to play or to bed right after dinner in case she forgets to take the medications later. So far this has been a good way to help her remember. We train our workers to think creatively and solve problems with the family on a case-by-case basis. These seemingly mundane details bring tremendous amount of value to the well beings of the children.
Our latest Newsletter has hit the the streets, and we also have another matching drive coming up in just a few days! Please scroll down to read more about the matching drive starting October 15th at 9:01pm, EDT ( this time in your city). All donations are matched by 30% (up to $1,000 per donor) while funds last!
Here is a great article about one of our essential and hard working Community Health Workers, Jin-Hong, from the Newsletter:
Jin-Hong has long ties with the AOS-PATS family. Heart-wrenchingly featured in Blood of YingZhou District, she and her two younger siblings lost their parents to HIV/AIDS when they were very young. Even though the three of them do not have the disease, they were still faced with harsh discrimination in school and in their neighborhood. Jin-Hong and her siblings were forced to grow up quickly. Luckily, the director of AOS took them under her wing and helped them thrive.
Fast forward to today, Jin-Hong is the health worker in charge of more than 15 kids in Lixin County. She is always dressed with the latest fashion (ruffled skirt with colorful leggings and straight across bangs) and wears a huge smile on her face. With her background, she has the unique ability to empathize with the par-ents and children in the PATS program. Not only does she make home visits to do pill counts and regular checkups, she also uses an instant messaging program like QQ to stay in touch with the PATS kids who are now teenagers. Through seemingly small innovations like this, she was able to not only be the kids’ health worker but their friend and men-tor. She sets an example to the PATS children that life doesn’t end because you or your loved ones are touched by HIV/AIDS. She has transformed the tragedy in her life into fuel and strength to inspire her to help others.
We have another wonderful matching drive coming up just for projects in our region! If you have been meaning to donate to PATS this year but haven't yet, this is a great opportunity for you to stretch your dollars a little further for the PATS kids! All donations are matched by 30% (up to $1,000 per donor) while funds last! We encourage you to get donations in as early as you can, because matching funds will definitely run out before the end of the day.
Wednesday, October 16th (starts Tuesday, October 15th at 9:01 pm EDT) $15,000 available in matching Start time: 9:01 pm EDT October 15 (this time in your city)
Hello PATS supporters,
In our last update, we told you about the passing of PATS advisor, Wang Liyao. In his memory volunteers and supporters came together in early May in Boston to remember his life and inspiring contributions. Zhang Ying, founder of PATS China-based partner, AIDS Orphan Salvation Association (AOS), traveled from China and was among the many guests who paid tribute by planting a tree in Wang Laoshi's honor. Attached are some pictures from the day.
We also wanted to thank our supporters who pitched in their dollars during the PATS tribute matching drive on GlobalGiving! We were able to raise over $5,000 through new and existing supporters on GlobalGiving, which is an amazing achievement. This just goes to show that even for a small, volunteer run organization, we can all do a lot when we put our minds to it! All toward the common goal of continuing our mission of helping our kids have happy, healthy childhoods.
In other news, we have some volunteers visiting our kids in China towards the end of the summer, and we will post photos and additional updates after that trip.
We'll also have our quarterly newsletter available soon!
Dear PATS supporters,
It’s only a few weeks until Mother’s Day! We wanted you guys to know about great fundraising drive GlobalGiving is funding for Mother's Day. From now until May 12th, every donation made as a gift on the PATS GlobalGiving project page will be matched by GlobalGiving with an additional $5 donation. Donate to PATS as a gift/in honor of someone else by selecting the third giving option, “gift or in honor of,” under the orange donate button on the project page. GlobalGiving will send the gift recipient an email, snail mail, or print-at-home card.
GlobalGiving will be awarding $1,000 to the project with the most money raised and $1,000 to the project with the most tribute card donors. Help us get the $1,000 bonus for largest number of tribute card donors! Even $5 will help- that means at least $10 for PATS and helps us on our way to an additional $1,000. That is enough to fund all of the needs for one child for one year.
You may use the following link: http://www.globalgiving.org/projects/pats/?show=gift
Thanks for all of your continued support. Follow us on our Facebook page for more frequent updates on what we've been up to. https://www.facebook.com/pages/PATS-Pediatric-AIDS-Treatment-Support
On another note, we have some sad news to share. PATS Advisor Wang Liyao (also known as Wang Laoshi) passed away at the beginning of March after a brave, year long battle with pancreatic cancer. He left the world peacefully with his family at his side in Hangzhou, China. He cared so much for the PATS children and we will miss him dearly. His son Jason said, "I'd like to take this chance to thank you all, people in PATS and Boston and the others for the kind concern and support given to my dad. His heart, mind and love are always with you even in his last days." Here he is last May with Board Member Jialan. The PATS volunteers will be holding a memorial for him in Boston early next month and will plant a tree in his memory.
Our Associate Director, Cherry Wan, went to XinXiang, Henan, Fuyang and Anhui in December to visit our kids. Here are a few highlights of her trip: We welcomed one new PATScommunity health worker, Ms. Zhang, who was formerly a schoolteacher. She works very well with the children and is especially great at helping them set goals. During the home visits, Cherry noticed that Ms. Zhang was checking each child’s fingernails. Cherry later learned that during the visits in the previous month, Ms. Zhang asked every child to keep their hands and nails clean as part of their effort to maintain proper hygiene. This is a small example of the dedication and diligence that the workers apply to caring for the PATS kids. On this trip, Cherry facilitated a conference call between our medical advisor/board member, Dr. Jessica Haberer, and the community health workers. They discussed specific issues related to the children, such as possible drug resistance and behavioral problems. The workers benefited greatly from Jessica’s advice, and these continued conversations will help develop the workers’ technical skills. Lastly, as more PATS kids become young adults, we are planning activities around age-appropriate sex education. While PATS continues to evolve, our core mission of providing comprehensive care and support to children living with HIV/AIDS remains unchanged. Here's a picture of Long, one of our newest PATS kids, wearing a hat from his Sponsor.
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