Epilepsy Movement Monitors for Epilepsy Patients

 
$1,314
$23,687
Raised
Remaining
Dec 5, 2013

Update on Chelsea Hutchison Foundation Project

Thank you again for contributing to our project and for allowing us to grant comfort and hope to those living with seizures.  Because of you and others like you, we have now provided over 160 seizure monitors for those in need.   

Epilepsy affects over 3 million Americans of all ages - more than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson's disease - combined.  Almost 500 new cases of epilepsy are diagnosed every day and it is estimated that 50,000 Americans die from seizures and seizure-related causes every year in the United States.  Many parents and caregivers watch their loved ones seize 80-100 times a day.  

In September, we completed our 4th Annual Chelsea's Epilepsy Walk for SUDEP Awareness.  What started out as a small gathering of good friends and family in Littleton, CO, has grown to organized walks in (6) locations across the United States.   We have been approached by groups in (4) additional States for 2014's walk.  We will be changing the name of the walk to STOMP! out SUDEP and Epilepsy.  Watch for a walk in your area.

CHF has been asked to be one of the National Co-Hosts of the 2nd Annual Epilepsy Awareness Day at Disneyland Resort, 2014.  We attended the 1st Annual last month, in fact, due to the generosity of an anonymous donor, we were able to take (2) families with us who might not otherwise have ever had the opportunity to go.  It is estimated that there were approximately 10,000 visiting the Park that day, 1,000 of whom were sporting specially branded purple tshirts raising epilepsy awareness.

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Organization

Project Leader

Julie Hutchison

Littleton, CO United States

Where is this project located?

Map of Epilepsy Movement Monitors for Epilepsy Patients