I wanted to give you an update on how this project is progressing. This is an ongoing project as we continue to receive 3-5 requests a week for help. Because of your help, and others like you, we have had the privilege of providing over 180 life-saving monitors to those who suffer from seizures. It is estimated that up to 50,000 seizure-related deaths occur each year in the United States so it is critical to get these lines of defense in the hands of families who deal with the every day effects of epilepsy. Chelsea Hutchison Foundation (CHF) feels strongly that if we had known about these monitors - or had even known that a seizure could be deadly - we might still have our Chelsea with us.
The Chelsea Hutchison Foundation ensures that ALL in need will be served by helping people on a first-come first-served basis rather than case-by-case, assuring that anyone who feels they need help – and may not qualify elsewhere – receives the help they need. CHF recognizes that SUDEP can happen during any seizure, even those experienced relatively infrequently, and seeks to provide those individuals and families with the same level of care and support they provide to all families.
In addition to our Globalgiving campaigns, CHF holds two major fundraisers each year. On, May 2, 2014, we will hold its annual gala at The Curtis Ballroom located at Comedy Works South in Greenwood Village, CO. This year, our theme is Comedy for Canines and our headliner for the evening will be Kevin Fitzgerald, best known for his 10 seasons on the popular Animal Planet show, Emergency Vets. Kevin is a great comedian and his passion for making people laugh is surpassed only by his unwavering dedication to all creatures great and small. If you are in the area, we would love you to join us. For more information or to register, please visit www.ComedyforCanines.org.
Every fall, the Chelsea Hutchison Foundations hosts STOMP! (formerly Chelsea's Epilepsy Walk for SUDEP Awareness), an epilepsy walk for Epilepsy and SUDEP awareness. The fundraiser is currently held in six cities across the country (Littleton, CO, Wichita, KS, WInchester, VA, Woodbridge, VA, Eldon, MO, Northfield, IL), and expands to new cities every year. Nine to ten cities are expected to be added this year alone. Watch for details. There may be an organized walk near you!
Thank you again so much for your continued support! You are making a big difference!
Thank you again for contributing to our project and for allowing us to grant comfort and hope to those living with seizures. Because of you and others like you, we have now provided over 160 seizure monitors for those in need.
Epilepsy affects over 3 million Americans of all ages - more than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson's disease - combined. Almost 500 new cases of epilepsy are diagnosed every day and it is estimated that 50,000 Americans die from seizures and seizure-related causes every year in the United States. Many parents and caregivers watch their loved ones seize 80-100 times a day.
In September, we completed our 4th Annual Chelsea's Epilepsy Walk for SUDEP Awareness. What started out as a small gathering of good friends and family in Littleton, CO, has grown to organized walks in (6) locations across the United States. We have been approached by groups in (4) additional States for 2014's walk. We will be changing the name of the walk to STOMP! out SUDEP and Epilepsy. Watch for a walk in your area.
CHF has been asked to be one of the National Co-Hosts of the 2nd Annual Epilepsy Awareness Day at Disneyland Resort, 2014. We attended the 1st Annual last month, in fact, due to the generosity of an anonymous donor, we were able to take (2) families with us who might not otherwise have ever had the opportunity to go. It is estimated that there were approximately 10,000 visiting the Park that day, 1,000 of whom were sporting specially branded purple tshirts raising epilepsy awareness.
Rebecca, or Becca, is a bright 15-year old teen who has the energy of 10 others combined. She is determined to raise epilepsy awareness and educate those around her. She began having seizures when she was seven, but it has not stopped her in the slightest. To get a little insight as to this determined young lady, https://www.youtube.com/watch?v=oVp4il8oX6s to view Becca's video, "My Story about Epilepsy".
"When I turned 13, I decided to spread the word about Epilepsy. I was in the 7th grade and I asked my Mom and the school Principal if I could have everyone at school wear purple in November. I made purple ribbons that year and a poster. It was displayed in my school library for a year."
Once again, Becca has formed a team for Chelsea's Walk - Rebecca's Cougar Team. Her fundraising goal is $5,000, and we would not be surprised at all if she reaches that. Last weekend, she held "Rebecca Helsley's 1st Annual Bike Ride, Yard and Bake Sale" in Baker, West Virginia. She raised in excess of $200 and is providing those funds to Rebecca's Cougar Team. We hope to personally be able to attend the Rebecca Helsley's 2nd Annual Bike Ride.
Register at ChelseasWalk.org. Organized walks will take place in Colorado, Virginia (2), Kansas, Missouri and Illinois. Start pulling your teams together! If you aren't near one of our organized walks, consider showing your support by registering as a virtual walker and/or creating a virtual team or fundraiser to participate. Consider orchestrating your own group of friends to walk as a group in your own home town to raise awareness - we will provide the t-shirts! We are looking for volunteers for all walks. We have some amazing rewards for those who are willing to raise pledges for Chelsea's Walk. Please contact us at ChelseasLegacy@aol.com if you are interested.
For more information or to register, volunteer or sponsor Chelsea's Walk, go to www.ChelseasWalk.org
Epilepsy Awareness Day at Disneyland Resort 2013
Select Chelsea Hutchison Foundation as your
designed 501(c)3 Charity!
The Epilepsy Foundation is proud to present Epilepsy Awareness Day at Disneyland Resort on November 7, 2013 - during National Epilepsy Awareness Month. This will be the first official day at Disneyland Resort honoring a population impacted by a medical condition. The family fun day at the "happiest place on earth" will be all about celebrating the strength and unity of the epilepsy community - and also help us raise national attention about epilepsy.
Attendees can buy tickets at www.EpilepsyAwarenessDay.org, and designate part of the ticket price to support a 501(c)3 charity dedicated to helping people who live with epilepsy. CHELSEA HUTCHISON FOUNDATION IS ONE OF THOSE APPROVED 501(c)3 CHARITIES THAT YOU CAN DESIGNATE! Please help us spread the word and ask your friends to select Chelsea Hutchison Foundation when ordering tickets. We plan to be there that day!!!
Tickets include an official event day purple shirt and swag bag, each with special Disney artwork.
The event is presented in cooperation with the Epilepsy Foundation of Greater Los Angeles and the Epilepsy Foundation of San Diego County.
We just can't thank you enough for supporting The Chelsea Hutchison Foundation. Because of you and others like you, we have just fulfilled (3) additional seizure-response dog grants, bringing our total to 48. In addition, we were able to pay for (10) Emfit, (4) SmartWatch and (3) SAMiAlert monitors, brining our grant total of monitors provided to 122. We could not do this without your generous support!
"Just this past week, Connor did his first trip all on his own, by train. I can truly tell you that I never ever would have been able to let him do this without knowing he had that SmartWatch monitor. It was a huge independence move for him, and I am happy to say it all went well. The monitor is going to be something that changes all of our lives..." (Amy, Olymbia, WA)"
Thank you for your support of our mission to grant comfort and hope to those living with seizure disorders/epilepsy. With the generous support of you and others, we have just paid our 45th seizure-response dog grant. In addition, we have provided 112 life-saving monitors for those in need. We have a lot of work to do as epilepsy affects over 3 million Americans of all ages - more than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson's disease, combined. Almost 500 new cases of epilepsy are diagnosed every day and up to 50,000 American's die from seizures and seizure-related causes every year in the United States.
On Friday, April 26, 2013, Chelsea's Caribbean Beach Party Gala will be hosted by the Chelsea Hutchison Foundation at The Island Event Center in Denver, Colorado. This is the Foundation's 4th annual gala and promises to be a fun-filled evening with Caribbean dinner buffet, live music, dancing, entertainment and auctions - all on a sand-floor event center. Live music will be performed by Tunisia Band, who performed at both political conventions in 2012. It is a real honor for us to welcome them. Special guests include Shanna Wilkinson and her amazing seizure alert/response dog, Holly. Holly received the National Hero Dog Award in the Service Dog Category in 2012. Dan Mitchell of 99.5 The Mountain is the evening's emcee.
The Chelsea Hutchison Foundation is a Colorado non-profit corporation formed to help individuals, particularly children and young adults, who have epilepsy. The main focus is to raise funds to provide grants for seizure-response dogs. These trained service dogs may be able to detect an oncoming seizure and provide warnings and/or respond after the onset of a seizure. The Foundation also provides Emfit movement monitors and grants for SmartWatch monitors for those in need. Emfit monitors are the latest technology for monitoring an individual who, during sleep, may experience seizures which a caregiver or family should be alerted to. The SmartWatch is a patented, intelligent, motion detecting and alerting wristwatch. SmartWatch is a fully portable non-invasive device that continuously monitors movement, analyzes the information for abnormalities, issues alerts and securely records seizure events. To date, we have provided grants for 44 seizure-response and have provided over 100 monitors.
The Foundation is named for Chelsea, who died in her sleep during a seizure in April of 2009. SUDEP (Sudden Unexpected Death in Epilepsy) was the cause of her death. During the 6 years that Chelsea had seizures, no one ever told us a seizure could take her life, other than through an accidental fall or drowning. As a result of that omission, the Chelsea Hutchison Foundation informs those living with epilepsy of the risks and raises awareness of SUDEP so that no other families are blind-sided. For more information, please visit our website. www.ChelseaHutchisonFoundation.org or contact us directly at ChelseasLegacy@aol.com
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