Epilepsy Movement Monitors for Epilepsy Patients

 
$1,974
$23,027
Raised
Remaining
Recent Monitor Recipients
Recent Monitor Recipients

We are proud to state that The Chelsea Hutchison Foundation (CHF) has now provided 277 life-saving monitors across the United States.  We've even had the privilege of providing 3 in Canada and even one in Australia. It is because of people like you who make this possible.  We feel strongly that if we had known to be concerned and had a monitor in place, our sweet Chelsea might still be with us.  

In addition, CHF just provided our 69th seizure-response dog grant. It is so amazing to watch these teams matched up and begin their journey together.

We have several individual microprojects on GlobalGiving to fulfill our seizure-response dog grant requests.  You might find  interesting to read about some of the individuals who are affected and what having a furry companion means to them.

Seizure-Response Dog for Kyler

Seizure-Response Dog for Taylor

Seizure-Response Dog for Sammy

Seizure-Response Dog for Thomas

Seizure-Response Dog for Jon

Seizure-Response Dog for Oliver

Seizure-Response Dog for Brynn and Brett

Seizure-Response Dog for Nicole

On May 2nd, CHF will hold its 6th Annual Gala. This year's theme is "Comedy for Canines".  If you are in the area and wish to attend, we would welcome you with opened arms.  For more information, go to Comedy for Canines.

Save the Date for STOMP Out Epilepsy and SUDEP.  This is a National awareness walk that will take place in at least 10 cities across the United States in September.  More information will follow.

Here are a few photos of our most recent monitor recipients.  We hope you enjoy.

Thank you again for your support!  You are truly changing the lives of those who struggle with seizures!



As the year comes to a close, we would just like to take a moment and thank you for your support throughout 2014. Your support means so much and helps us accomplish our mission of saving lives of those living with and struggling with seizures.  The need is huge and your support and generosity is instrumental in allowing Chelsea Hutchison Foundation to continue making a difference in the lives of children and adults living with Epilepsy. To date, we have had the privilege of providing over 255 movement monitors across the United States.  We've provided 3 in Canada and even one in Austraila.  

If you are looking to make that end-of-year donation for tax purposes, we would be honored to accept it. 

Respectfully,

Epilepsy Awareness Day at Disneyland 2014
Epilepsy Awareness Day at Disneyland 2014

Thank you for your continued support of this project.  The Chelsea Hutchison Foundation is so excited to announce that we have just purchased our 256th life-saving movement monitors for those in need.  This is possible, in part, because of your generous support.  We work hard everyday as we receive 15-20 requests a month for help.

Here are the three monitors that we have provided.

Emfit Movement Monitor

SAMiAlert Monitor 

SmartWatch

We gathered across the United States (6 locations) in September to STOMP Out Epilepsy and SUDEP.  Organized walks took place in Colorado, Texas, Illinois, Kansas, Missouri and Virginia.  In addition, we had many virtual walkers join us that weekend from all over - even had some walkers in Canada.  This was our 5th Annual STOMP (formerly called Chelsea's Epilepsy Walk for SUDEP Awareness).  

On November 6th, we were lucky enough to be able to send 10 families to Epilepsy Awareness Day at Disneyland Resort 2014 because of one very special donor.  We took nominations and then randomly drew 5 single-parent families and 5 families who live with seizures and epilepsy.  This event was life-changing for these families and life-long friendships were made.  Community support is so important withe the isolation and misunderstandings that go along with this neurological disorder.  Chelsea Hutchison Foundation was asked to be a National Co-Host of this event and we were thrilled to be. Approximatley 1500 people gathered that day to raise awareness and show support.  

Thank you for your continued support!  When you donate to CHF, know that the funds we receive help families directly!

Respectfully

STOMP Out Epilepsy and SUDEP!
STOMP Out Epilepsy and SUDEP!

On July 16, 2014, ten families dealing with epilepsy or seizure-related illnesses were awarded all-expense paid trips to the 2014 Epilepsy Awareness Day at Disneyland on November 5- 7, 2014, compliments of The Chelsea Hutchison Foundation and one very generous anonymous donor.  Nominees were gathered through the Chelsea Hutchison Foundation, and winners were selected through a random draw.

The award winners are the Pfier family from Mobile, AL; the Burnette family from Hardinsburg, KY; the Bergstrom family from Douglas, MA; the Borel family from Port Arthur, TX; the Nelson family from Eden Prairie, MN; the Varnell family from Ft. Carson, CO; the Luna family from Hammond, IN; the Rudisaile family from Aurora, CO; the Weigand family from New Philadelphia, OH; and the Lyles family from Peyton, CO.

The 2014 Epilepsy Awareness Day at Disneyland is held in honor of Mattel Children’s Hospital UCLA, The Chelsea Hutchison Foundation, and the Danny Did Foundation. Award winners will attend the kick-off event on November 5 to learn more services, organizations, and information for the epilepsy community. On November 6, the families will enjoy the entire day at Disneyland in Anaheim, California. The experience will conclude on November 7 with a Picnic for all participants of the 2014 Epilepsy Awareness Day.  For these families, a trip like this is otherwise out of the question with the financial demands placed on them dealing with illness.

The Chelsea Hutchison Foundation serves individuals, families and communities affected by epilepsy by raising awareness of the common yet little-known condition SUDEP (Sudden Unexpected Death in Epilepsy), by providing support, grants for seizure-response dogs and equipment for prevention of this occurrence, and by creating a safe space and raising awareness within the greater community. The Foundation was founded in 2009 by Doug and Julie Hutchison after the sudden and unexpected death of their daughter, Chelsea.

Currently, the cause of SUDEP is not known, although it is the cause up to 20% of deaths in epileptic individuals[i], and over one-third of deaths among epileptic children.[ii] Although there is little awareness of SUDEP, even among individuals with epilepsy and their families, it is still the leading epilepsy-related cause of death, well above accidents resulting from an epileptic seizure, [iii] and preventive measures can be taken.

For more information about the Chelsea Hutchison Foundation and the 2014 Epilepsy Awareness Day at Disneyland, please contact Julie Hutchison at ChelseasLegacy@aol.com or visit the website: www.ChelseaHutchisonFoundation.org.  If you would like to donate to to enhance these family's trips further, we would welcome that.  Click here if you wish to donate to that project.

Please know that no funds from Seizure-Response Dogs for those with Epilepsy will be used for the Disneyland trips.

 

[i] http://www.dannydid.org/sudep/know-the-facts/

[ii] http://www.cureepilepsy.org/aboutepilepsy/facts.asp

[iii] http://www.dannydid.org/sudep/know-the-facts/ (http://www.epilepsyfoundation.org/aboutepilepsy/healthrisks/sudep/index.cfm?CFID=12690957&CFTOKEN=41034784).

SmartWatch Recipient
SmartWatch Recipient

Here is an update for this project.  We can’t thank you enough for continuing to contribute as many of you do.   The stories we receive from those we’ve helped will warm your heart.  Because of you and others like you, we are able to get the help directly into the hands of those who need it.

You sponsored me with the EMFIT Monitor and it has been a true blessing. We had a baby monitor before but it never gave me the security I needed in knowing that she was OK or that the little sounds she would make were only snores and not a seizure. We have just recently started using it and I fill at peace already. We tested it and tested it and retested it just to make sure that even the lightest touch would be detected.  I feel very secure with this device. You will never know how much you helped me and our family with your gift..the gift of peace..and you could almost consider it a gift of life, because now my daughter can live through a normal sleep and I can have a normal life of sleep. 

Comedy for Canines took place on May 2, 2014.  This is one of our two large annuual events.  Comedy for Canines was our 5th Annual Spring Gala and the feedback was spectacular.  We plan to continue this event as many felt this was the perfect mix.  Everyone ended their evening with hysterical entertainment.   We had three remarkable individuals and their families talk about the difference their seizure-response dog has made in their lives.  There wasn’t a dry eye in the place.  One amazing woman by the name of Diana stated to our crowd that not only does her seizure-response dog alert and respond to her seizures, but just a few days prior had summoned emergency help when she suffered a heart attack.  She was alone that evening – her husband was traveling.  Roxy realized what was going on and sounded the alarm and in minutes, emergency help arrived.  Diana felt, without a doubt, that Roxy had saved her life that evening. 

CHF just paid its 62nd grant for a seizure-response dog and has now provided 212 life-saving movement monitors across the US.  Having lost Chelsea to a seizure through the night, we are determined to make sure everyone who needs our help receives it. 

Watch for STOMP! Out Epilepsy and SUDEP Awareness Walk which will take place in several locations across the United States in September.  This is also the 5th Annual Awareness Walk – formerly called Chelsea’s Epilepsy Walk for SUDEP Awareness.  Known locations at this time are Colorado, Missouri, California, Virginia, Texas, Kansas and Illinois.  We would love you to join us at one of these walks if you are nearby.  If not, we will be posting virtual walking and team opportunities!! 

Comedy for Canines
Comedy for Canines
STOMP
STOMP

Links:

About Project Reports

Project Reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.

If you donate to this project or have donated to this project, you will get an e-mail when this project posts a report. You can also subscribe for reports via e-mail without donating or by subscribing to this project's RSS feed.

donate now:

Make a monthly recurring donation on your credit card. You can cancel at any time.
Make a donation in honor or memory of:
What kind of card would you like to send?
How much would you like to donate?
  • $10
    give
  • $25
    give
  • $50
    give
  • $100
    give
  • $300
    give
  • $600
    give
  • $1,000
    give
  • $10
    each month
    give
  • $25
    each month
    give
  • $50
    each month
    give
  • $100
    each month
    give
  • $300
    each month
    give
  • $600
    each month
    give
  • $1,000
    each month
    give
  • $
    give
gift Make this donation a gift, in honor of, or in memory of someone?

Organization

Project Leader

Julie Hutchison

Littleton, CO United States

Where is this project located?

Map of Epilepsy Movement Monitors for Epilepsy Patients