Epilepsy will affect 1 in 26 Americans at some point in their lives, and an estimated one-third of epilepsy-related deaths in children are due to SUDEP (Sudden Unexpected Death in Epilepsy). With awareness, preventative measures can be taken. This project raises money to provide epilepsy movement monitors for children with epilepsy and their families so they can have the comfort of knowing their health will be monitored at all times, and the possibility of preventing SUDEP.
What is the issue, problem, or challenge?
SUDEP (Sudden Unexpected Death in Epilepsy) is thought to cause over one third of deaths in children diagnosed with epilepsy. Despite being so common, most families, friends and teachers are not aware of the very real possibility of death for individuals living with epilepsy; thus, simple preventative measures are not taken. Due to the prevalence of epilepsy in the United States, the potential for SUDEP coupled with insufficient knowledge about its prevention affects us all.
How will this project solve this problem?
Movement monitors can alert a parent or caregiver of a seizure and allow them an opportunity to administer life-saving measures if necessary. To date, CHF has provided 65 seizure-response dog grants and over 230 movement monitors. We received 5-10 requests a week for help.
Potential Long Term Impact
This particular project will provide up to 35 people with movement monitors in the coming year, decreasing the risk of each seizure and greatly increasing the likelihood of surviving a life-threatening episode for people living with epilepsy. This project will also raise awareness about SUDEP to encourage further support of individuals living with epilepsy, their families, and their communities
Total Funding Received to Date: $1,998
Remaining Goal to be Funded: $23,002
Total Funding Goal: $25,000