This program provides movement monitors across the United States to those struggling with seizure/epilepsy and can't otherwise afford them. These monitors bring peace to families who otherwise don't sleep at night concerned over the safety of their loved ones. They also allow a freedom and independence for those who who isolated themselves because of the fear of having a seizure outside their homes. In addition, this Foundation provides grants for fully-trained seizure-response dogs.
What is the issue, problem, or challenge?
Epilepsy affects over 3 million Americans of all ages - more than MS, cerebral palsy, MD and Parkinson's combined. Almost 500 new cases of epilepsy are diagnosed every day and 50,000 American's die from seizures and seizure-related causes every year in the US. Many living with Epilepsy cannot work, drive or live alone and parents caring for children with Epilepsy need support and lines of defense to keep their children safe. Many caregivers watch their children seize up to 100 times a day.
How will this project solve this problem?
Like 16-year old Chelsea, many seizure-related deaths occur at night and are not witnessed and unexpected. Most don't even know a seizure can be life threatening. Movement monitors can alert a parent or caregiver of a seizure and allow them an opportunity to administer life-saving measures if necessary. SmartWatch monitors allow young adults and adults more independence as they feel safe knowing if a seizure does occur, their family and/or caregivers will be alerted and be able to respond.
Potential Long Term Impact
Our goal is to get life-saving measures in line for all who could benefit from them. By raising SUDEP (Sudden Unexpected Death in Epilepsy) awareness, our hope is to get epilepsy research on the radar. Most believe that if you have seizures you can take a pill and be cured. Truth is that only 1/3 of those with seizures are controlled by medication. For many, multiple seizures are an every-day part of their life. 1 in 26 will be diagnosed with epilepsy in their lifetime.
Total Funding Received to Date: $1,304
Remaining Goal to be Funded: $23,697
Total Funding Goal: $25,000