Help Sickle Cell Anaemia patients lead better life

 
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Sep 4, 2012

MAM's Sickle Cell Project Report May JuneJuly 2012

Maharashtra Arogya Mandal’s

Sickle Cell Project

 

Report on - Sickle Cell Activities - May, June July 2012

May 2012

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up camp from 26th to 28th May 2012. During the Pune to Dhadgaon journey we had medicine distribution for our old diagnosed sickle cell patients at Dhule, Maharashtra.

On Sunday 27th May 2012, 159 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 52 tribal individuals was done among which 22 were diagnosed as carriers and 16 patients were identified as sufferers. Advice and counseling regarding the dietary and behavioral regime was given to both old and new patients. The carriers were provided with counseling, emphasis was given on pre/ post marital guidance.  The 14 individuals were diagnosed as normal which were also guided for this social problem. 

All the individuals were from different tribal parts of Nandurbar district and from the neighboring state of Maharashtra viz. Gujarat and Madhya Pradesh mostly from low socio economic class.

 

 On Monday 28th May 2012 similarly 269 old patients had been given medications and 41 new individuals were screened for sickle cell disease. Newly screened 13 patients were diagnosed as sufferers and 18 were diagnosed as carriers and 10 individuals as normal. During this camp it was observed that oral re-hydration solution along with the possible treatments helps in decreasing the pain during the sickle cell crisis.

On Monday 28th May 2012 District Civil Surgeon of Nandurbar visited our Sickle Cell Community Control Centre (Sickle Cell Dawakhana) and requested our Head of Sickle Cell Department Prof. Dr.S.L.Kate to guide the Medical and Paramedical staff regarding sickle cell anemia and its diagnosis.

On Tuesday 29th May 2012 our sickle cell team visited Civil Hospital (District Hospital). Prof. Dr.S.L.Kate had a discussion with the team of Doctors and Laboratory technicians. He also guided them regarding the laboratory diagnosis methods.

June 2012

Reference

http://www.unesco.org/new/en/unesco/events/all-events/?tx_browser_pi1%5BshowUid%5D=4087&cHash=1958bcc3eb

UNESCO celebrates 19thJune as Sickle Cell Day.
Sickle Cell Disease (SCD) is the most frequent genetic disease worldwide. Maharashtra Arogya Mandal’s (MAM) Sickle cell Department also celebrated the World Sickle Cell Day on 19th June 2012.

On this occasion an informative lecture was given to the MAM staff members. Sickle cell Department Head Prof. Dr.S.L.Kate delivered an informative lecture on this occasion. The teachers from Sumatibhai Shah Ayurved College, Staff of Sane Guruji Arogya Kendra and MAM, Nursing Institute, Sickle Cell patients and their relatives were present on this occasion. Parents of sickle cell patients shared their experiences.

During 19th to 23rd June 2012 Maharashtra Arogya Mandal Sickle cell Department has conducted free sickle cell diagnostic camp. Many patients took the benefit of sickle cell diagnostic camp. 

 


 

July 2012

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up camp from 28th to 30th July 2012 at Dhadgaon Dist- Nandurbar. During the journey from Pune- Dhadgaon we had medicine distribution and medical check up of our 4 old diagnosed sickle cell patients at Dhule, Maharashtra.

On Sunday 29th July 2012, 255 old diagnosed sickle cell patients were clinically examined and were given free medications.

Also screening of new 114 tribal individuals was done among which were 51 diagnosed as carriers and 37 patients were identified as sufferers.

Advice and counseling regarding the dietary and behavioral regime was given to both old and new patients.

The carriers were provided with counseling, emphasis was given on premarital guidance specifically to unmarried individuals.  The 26 individuals were diagnosed as normal which were also guided for this social problem. 

 On Monday 30th July 2012 similarly 262 old patients had been under gone clinical examination and were provided free medications.57 new individuals were screened for sickle cell disease. In new screened 12 patients were diagnosed as sufferers and 27 were diagnosed as carriers and 17 individuals as normal.

All the individuals were from different tribal parts of Nandurbar district and from the neighboring state of Maharashtra viz. Gujarat and Madhya Pradesh mostly from low socio economic class.

Anil Gujar

Secretary

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Organization

Project Leader

Mr Anil S. Gujar

Pune, Maharashtra India

Where is this project located?