Help Sickle Cell Anaemia patients lead better life

 
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Smt Sindhutai Sapkal -guest World sickle cell day
Smt Sindhutai Sapkal -guest World sickle cell day

                       Maharashtra Arogya Mandal’s Sickle Cell Dawakhana

                                                       Activity report May-June 2015

 

Being Head of Sickle Cell Department and Emeritus Medical Scientist, I am very happy to write this activity report on behalf of our Project Director Mr Anil Gujar Secretary Maharashtra Arogya Mandal Hadapsar Pune-28, for May-June 2015. Thanks to you all, for helping us to arrange 89th free Sickle cell camp for the 20th year now.

Kalpesh 8 year tribal boy is a sickle cell sufferer and taking medicines from MAM. His parents are sickle cell carriers. They can dream of educating their child now….and he is not alone. Your support has made possible to avail diagnostic facilities for our new 235 beneficiaries and 100% medicine supply rate for new 52 sickle cell patients and old 765 patients   in this camp.

That's right - your support resulted in success for every single patient we sought to help. Imagine what we can do together for the next camp in July 2015, camp.

“Please make a year-end gift or X mas Gift so more children like Kalpesh can leave normal school life this year” with a big Donate button next to that call to action.

In the sickle cell camp we reinforce the sense of urgency... for counseling, diagnosis and treatment for this medico-social problem of sickle cell disease. For example pre marital counseling, genetic counseling, affordable and accurate diagnosis and free supply of medicines to improve quality of life and reduce blood transfusions. This camp recorded largest beneficiaries of 1005 from inception of the project. “We are nearly to our goal of creating medico-social awareness in society. Your gift will help put us over the top. Thanks for your support.”

We are encouraged and helped by Global giving platform along with supporters like Cummins India Foundation, AWO Germany and Central Council for Research in Ayurveda and Siddha New Delhi along with socially oriented individual donors and organizations.

 

You must have experienced a needle prick for your regular immunization or so rarely that you don’t even remember. Can we imagine a 14 year old child Shweta from Madhya Pradesh getting multiple pricks of painful injections, blood transfusions and recurrent doctor visits (more than 100 kms away from home) as a part of his or her daily ritual? No...We cannot see them suffer in pain.

In sickle cell disease pain is considered as the destiny, as no full proof treatment is available. With the help of our herbal medicines and life support they can face that pain with an armor of hope and sustain longer. People in tribal area are facing this disease as a part and parcel of their life. With our medical expertise and your financial aid we are just lending them a hand to walk through these difficulties with ease. Kindly help us forward this appeal to family and friends to help spread the message “Your gift of mere $10 will mean one patient like Kalpesh will be treated every day for one month while attending his primary school, Your donation will help us buy blood testing machines, warm clothes and medicines to ensure every sickle cell tribal family is healthy.”

Remember that every donation makes a difference, regardless of size. 

 

Our Activities at glance: 

1)    At Dhadgaon where we organise our regular activities i.e. sickle cell camp for two days i.e. on 30th May and 1st June 2015.  After screening 235 Tribal Population, Total New 52 patients were identified along with 1005 Beneficiaries in this camp; they were provided with possible adequate medication and counselling.

2)    On Monday 1st June 2015 we organised a common prayer in memory of Late Shri.Bhimasingh Pawara who gave us a land for construction of Sickle Cell Dawakhana.  During this there was a distribution of fruits to sickle cell patients. 

3)  On 10 June 2015 Maharashtra University of Health Sciences (MUHS) Nasik, Maharashtra felicitated   Dr. S.L.Kate Head Sickle Cell Department with lifetime achievement award to for his exemplary contribution in field of teaching and medico-social services .

4) As declared UNESCO we observed World Sickle Cell Day on 19th June 2015. During 15th to 19th June we organised free sickle cell screening camp at Maharashtra Arogya Mandal’s Sane Guruji Hospital Hadapsar Pune. During this camp out of 75 individuals we indentified 3 carriers and 3 sufferer individuals. The sufferers and carrier were provided with counselling and medications.

5)  On 19th June 2015 we organised a meeting at Maharashtra Arogya Mandal’s Sane Guruji Hospital Hadapsar Pune, of Patients, Teachers, Staff members of our institute. Renowned social entrepreneur Smt. Sindhutai Sapkal was the chief guest of Honour for the function. Dr. S.L.Kate elaborated the importance of sickle cell screening and awareness programme.

6)  On 20 June Ministry of Tribal Affairs Government of India in collaboration with Tribal Research Training Institute, Pune of Government of Maharashtra had organised a one workshop on Malaria, Sickle Cell Anaemia and finding water bodies for Pisciculture in which Dr.S.L.Kate and Dr.Yogesh Prabhune were the resource person for this workshop in topic related to Sickle Cell Disorder.

Thank you in advance for your support!

Sincerely,                                                            

Dr S L Kate                                                                      Anil Gujar                                                    

Sickle cell Scientist                                                     Project Director

Sickle cell Department                                           Maharashtra Arogya Mandal                               

MUHS LIFE TIME AWARD DR KATE HOD SICKLE CELL DEPT
MUHS LIFE TIME AWARD DR KATE HOD SICKLE CELL DEPT
medical checking camp
medical checking camp
Seminar of SCD-Resource person Dr.Kate
Seminar of SCD-Resource person Dr.Kate
fruit distribution
fruit distribution

Links:


Attachments:
Sickle Cell Team
Sickle Cell Team

                                               Maharashtra Arogya Mandal’s Sickle Cell Project

                                    Sickle Cell Activities –January and March 2015 Activities report  

Maharashtra Arogya Mandal (MAM) conducted free Sickle Cell Health check up camp from 24th to 26th January 2015. During the Pune to Dhadgaon journey we had medical check-up and medicinal kit was given to our 4 old diagnosed sickle cell patients at Dhule, Maharashtra.

The work started with Memory Prayer on occasion of Anniversary of founder Member Late Dr. S.T.Gujar, Paediatrician Late Dr.Dhairyasheel Shirole, Late Smt Hansabai Kate (Mother of Dr.S.L.Kate- Head Sickle Cell Department). On this occasion distribution of laddo_s was done amongst Sickle Cell Patients and Relatives. 

On Sunday 25/01/2015 395 old diagnosed sickle cell patients attended the camp. They all  were clinically examined and were given free medications and counselling.

On the same day screening of new 168 tribal individuals attended the camp their blood samples were taken and subjected to laboratory investigations.

On the basis of their laboratory reports we classify them into

1)     Normal Status (A+A Pattern)) without sickle cell

2)    Carrier Status (A+S Pattern)

3)    Sufferer Status (S+S Pattern))

During the screening 35 patients were identified as sufferers who were clinically examined and provided with free medications. In remaining 133 tribal population 88 were identified as carriers and 45 as Normal  i.e without sickle cell. They were provided with cards on the basis of their Sickle Cell Status. i.e. Yellow card for carrier and white card for Normal . All the individuals were provided with marriage counselling.

 On Monday 26th Jan. 2015 similarly 288 old patients had been given examined and provided with medications and 50 new tribal individuals were screened for sickle cell disease. In newly screened 11 patients were diagnosed as sufferers and 30 were diagnosed as carriers and 9individuals were diagnosed as normal i.e. without sickle cell.

All the individuals were from different tribal parts of Nandurbar, Dhule district of Maharashtra and from the neighbouring state viz. Gujarat and Madhya Pradesh mostly from low socio economic class. During this camp distribution of Sweaters, Cloths and Nutritious food supplement was done to sickle cell patients.

During this camp two patients were suffering from Acute Sickle Cell crisis who were treated during the camp.

On 28th January 2015 National conference of Indian Society of Human Genetics was held in Mumbai Dr.S.L.Kate HOD Sickle Cell Department and Dr.Girish Kulkarni attended the conference where Dr.S.L.Kate was felicitated with Lifetime achievement Award for his basic contribution in genetics research. Dr.Girish Kulkarni presented a poster in this Conference.

On 26th March 2015 Maharashtra Arogya Mandal’s Sumatibhai Shah Ayurved Mahavidyalaya (SSAM)  and  Dept. of Sickle Cell Anaemia in collaboration with Maharashtra University of Health Sciences Nasik organised a National Seminar on Sickle Cell Anaemia.

Academic and Non Academic Staff of SSAM and 285 delegates including Medical officers from National Rural Health Mission Govt of Maharashtra and paramedics from various states of India attended the conference.

This conference was inaugurated by Dr.K.Gosh Former Director of National Institute of Immuno-Haematology (NIIH) (ICMR) Mumbai. Dignitaries from (NIIH)  (Indian Council of  Medical Research) Mumbai Dr.Roshan Colah, Dr.Kushnuma Italia, Dr. Ajit Gorakshakar presented various topics in Sickle cell Anaemia  Research. Dr. R.Manchanda (Director-Pathology KEM Pune), Dr.Jyotish Patel (Paediatrician and Director Vision Medical Foundation for Rural Health & Research (Bardoli), Dr. Yazdi Italia, Dr.Sirin Patel  Dr. Anant Bagul Dr.Vasudev Charan elaborated various topics on sickle cell disease.

In this seminar publication ceremony of Books written by Dr.S.L.Kate, regarding Laboratory Diagnosis of Sickle Cell and other abnormal haemoglobins) and Dr.Jyotish Patel regarding treatment, councelling and clinical diagnosis of sickle cell in hindi was done by auspicious hands of Dr.K.Gosh Ex-Director -NIIH) (ICMR) Mumbai. Dr.S.L.Kate (President of Seminar and Head Sickle Cell Anaemia Dept.), Mr. Anil Gujar (Secretary MAM) , Dr.S.F.Patil (President-MAM) , Dr. Neelakshi Pradhan (Princepal SSAM) , Dr. Prashant Dalvi (Vice President-Seminar) , Dr.Girish Kulkarni (Organising Secretary-Seminar) Dr. Mukund P. Erande were the dignitaries present on this occasion.

Dr. Arun Jamkar Vice Chancellor Maharashtra University of Health Sciences Nasik –Chief patron of this seminar was  chief guest for the valedictory function. In his speech he emphasised the work on the genetics and appreciated the efforts taken by Maharashtra Arogya Mandal on work taken as a medico-social mission.

In this seminar Mr.Manoj Pawara, Mr.Hari Yeola, Mr and Mrs Kulkarni were felicitated by for their commendable contribution for Sickle cell anaemia by Mr. Arun Gujar.

In these seminar representatives from Oddisa (Dr.Satyabrata Meher) , Maharashtra (Dr.Yogesh Prabhune. Mr.Dadaji Kothe) , Chhattisgarh (Dr.Pradeep Devengun) , Kerala (Dr.Anuj Singhal) , Gujarat (Dr.Bhavesh Kolcha), Madhya Pradesh (Dr.Ajit Gorakshakar)  displayed poster presentations about sickle cell prevalence in their respected states.

Dr.Pranita Joshi-Deshmukh, Dr.Nilesh Kulkarni, Dr.Vishakha Gaikwad, Dr. Sachinkumar S.Patil, Dr.Abhijit Chitnis coordinated the sessions of seminar.

We also conducted a free sickle cell health check up camp from 28/3/2015 to 30/03/2015. During the Pune to Dhadgaon journey we had medical check-up and medicinal kit was given to our 4 old diagnosed sickle cell patients at Dhule, Maharashtra.

On Sunday 29/3/2015, 417 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 120 tribal individuals was done among which 60 were diagnosed as carriers and 26 patients were identified as sufferers. Advice and counselling regarding the dietary and behavioural regime was given to both old and new patients. The carriers were provided with counselling, emphasis was given on pre/ post marital guidance.  The 34individuals were diagnosed as without sickle cell disease were also guided for this socio-medical problem. 

 On Monday 30/03/2015 similarly 347 old patients had been given examined and provided with medications and 51 new tribal individuals were screened for sickle cell disease. In newly screened 11 patients were diagnosed as sufferers and 30 were diagnosed as carriers and 10 individuals were diagnosed as normal i.e. without sickle cell.

During this camp distribution of Cloths and fruits was done to sickle cell patients.

We are thankful to our kind donors who donated us warm clothing’s and also to volunteers who helped us to manage this task.

Thanks and Regards

Anil Gujar

Secretary

Maharashtra Arogya Mandal

Malwadi, Hadapsar

Pune-411028 (India)

+91-09850730341

secretary@mam.org.in

astgujar@gmail.com 

Fruit Distribution
Fruit Distribution
Fruit Distribution1
Fruit Distribution1
Medical Check Up
Medical Check Up
Patient Awaited
Patient Awaited
Seminar_candidates
Seminar_candidates
VIP PERSONNAL_SEMINAR
VIP PERSONNAL_SEMINAR
Dr Arun Jamkar VC MUHS at our seminar
Dr Arun Jamkar VC MUHS at our seminar

Attachments:
Patients waiting for treatment
Patients waiting for treatment

                                                                   Maharashtra Arogya Mandal’s

                                                                           Sickle Cell Project

                                              Sickle Cell Activities – September and November 2014 Camp report

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up camp from 27th to 29th September 2014. During the Pune to Dhadgaon journey we had medical check-up and medicinal kit was given to our 4 old diagnosed sickle cell patients at Dhule, Maharashtra.

The work started with Memory Prayer on occasion of Anniversary of founder Member Dr. S.T.Gujar (15th August) . On this occasion distribution of fruits was done amongst Sickle Cell Patients and Relatives.

On Sunday 412old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 167 tribal individuals was done among which 63 were diagnosed as carriers and 62patients were identified as sufferers. Advice and counselling regarding the dietary and behavioural regime was given to both old and new patients. The carriers were provided with counselling, emphasis was given on pre/ post marital guidance.  The 42 individuals were diagnosed as without sickle cell disease were also guided for this socio-medical problem. 

 On Monday 28th Jan. 2013 similarly 337 old patients had been given examined and provided with medications and 61 new tribal individuals were screened for sickle cell disease. In newly screened 22patients were diagnosed as sufferers and 30 were diagnosed as carriers and 13 individuals were diagnosed as normal i.e. without sickle cell.

All the individuals were from different tribal parts of Nandurbar, Dhule district of Maharashtra and from the neighbouring state viz. Gujarat and Madhya Pradesh mostly from low socio economic class. During this camp distribution of Sweaters, Cloths and Nutritious food supplement was done to sickle cell patients.

During this camp we have recorded the highest figures of diagnosed sufferers in two days (84).

Similarly we conducted a free sickle cell health check up camp from 29th November 2014 to 1st December 2014. During the Pune to Dhadgaon journey we had medical check-up and medicinal kit was given to our 6 old diagnosed sickle cell patients at Dhule, Maharashtra.

This was a winter season in which sickle cell patient’s sufferer from joint pain. We collected usable warm clothes like sweaters and distributed them during the start of each day of camp.

On Sunday 30th November 2014 366old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 214 tribal individuals was done among which 98 were diagnosed as carriers and 57patients were identified as sufferers. Advice and counselling regarding the dietary and behavioural regime was given to both old and new patients. The carriers were provided with counselling, emphasis was given on pre/ post marital guidance.  The 59 individuals were diagnosed as without sickle cell disease were also guided for this socio-medical problem. 

 On Monday 1st December 2014 similarly 318 old patients had been given examined and provided with medications and 45 new tribal individuals were screened for sickle cell disease. In newly screened 16patients were diagnosed as sufferers and 20 were diagnosed as carriers and 09 individuals were diagnosed as normal i.e. without sickle cell.

All the individuals were from different tribal parts of Nandurbar, Dhule district of Maharashtra and from the neighbouring state viz. Gujarat and Madhya Pradesh mostly from low socio economic class. During this camp distribution of Sweaters, Cloths and Nutritious food supplement was done to sickle cell patients. We thank to our kind donors who donated us warm clothing’s and also to volunteers who helped us to manage this task.

Thanks and Regards 

Anil Gujar

Secretary

Maharashtra Arogya Mandal

Malwadi, Hadapsar

Pune-411028 (India)

+91-09850730341

secretary@mam.org.in

Fruits_Distribution
Fruits_Distribution
Laboratory_work
Laboratory_work
WarmCloths1
WarmCloths1
WarmCloths2
WarmCloths2
WarmCloths3
WarmCloths3

Attachments:
Dhule check up
Dhule check up

                                                     Maharashtra Arogya Mandal’s

                                                             Sickle Cell Project

                                                Sickle Cell Activities –June July 2014

WORLD SICKLE CELL DAY CELEBRATION

UNESCO had declared 19th June 2014 as World Sickle Cell day.

Sickle Cell Department of Maharashtra Arogya Mandal (MAM) Hadapsar Pune has celebrated this day to create awareness of Sickle-Cell Anaemia as a public health problem in the community.

Prof. Dr. Mrs. Mrudula Phadke Former VC MUHS Nasik was the chief guest for the function. Dr. S.L.Kate, Mrs. A.S.Kate, Dr.V.B.Kaknurkar Principal Sumatibhai Shah Ayurved College, Dr. R.M.Dhere Executive Director Serum Institute of India Pune, Mr.Nitin Gengje Dr. Jignesh Doshi, Dr. M.P Bankar Professor Department of Biochemistry B.J Medical College Pune, and Dr. Mrs. Pooja Doshi Department of Biochemistry University of Pune, Dr. Anita Kar School of Health Sciences University of Pune were the dignitaries present on this occasion.

Post graduate students from Ayurved, Biochemistry and Health Sciences Faculty were present on this occasion.

The function started by paying homage to Founder secretary Late Dr.Dada Gujar and eminent paediatrician Dr. Dhairyasheel Shirole.

Dr.S.L Kate explained the significance and purpose of celebrating World Sickle Cell day.

Dr.R.M.Dhere and Dr. Mrudula Phadke lauded the efforts done by Dr.S.L.Kate and the institutional team work in field of Sickle Cell Anaemia.

Dr. Gunvant Yeola elaborated the details of Sickle Cell Disease and its management with a presentation.

The program was coordinated by Dr. Girish Kulkarni and Dr.Yogesh Prabhune

Dr. Prashant Dalvi delivered vote of thanks.

Considering the commendable work of Maharashtra Arogya Mandal in hilly remote tribal area in Satpuda Ranges at Sickle Cell Dawakhana Roshmal Budurk, Tal. Dhadgaon, Dist. Nandurbar; Dr. Cyrus Poonawalla Chairman, Cyrus Poonawalla Group Serum Institute of India, Hadapsar Pune donated 18 seater vehicle (Tempo Traveller) to our institute. Dr. R.M.Dhere Executive Director Serum Institute of India Pune on behalf of Dr.Cyrus Poonawalla, handed over the vehicle to Secretary MAM Mr. Anil Gujar.

Details of Medical Camp of July 2014

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up camp from 26th to 28th July 2014.

During the Pune to Dhadgaon journey we had medical check up and medicinal kit was given to our 7 old diagnosed sickle cell patients at Dhule, Maharashtra.

On Sunday 27th July 2014, 335old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 112tribal individuals was done among which 45were diagnosed as carriers and47patients were identified as sufferers. Advice and counselling regarding the dietary and behavioural regime was given to both old and new patients. The carriers were provided with counselling, emphasis was given on pre/ post marital guidance.  The 20 individuals were diagnosed as without sickle cell disease were also guided for this socio-medical problem. 

 

 On Monday 28th July 2014, similarly 326 old patients had been given examined and provided with medications and 51new tribal individuals were screened for sickle cell disease. In newly screened 14patients were diagnosed as sufferers and 27 were diagnosed as carriers and 15individuals were diagnosed as normal i.e. without sickle cell. All were provided with counselling the patients were medically examined and medications were provided free of cost.

We have identified 57 sufferers in two days which is one of the highest figures.

All the individuals were from different tribal parts of Nandurbar, Dhule district of Maharashtra and from the neighbouring state viz. Gujarat and Madhya Pradesh mostly from low socio economic class. During this camp distribution Nutritious food supplement was done to sickle cell patients.

Medical Camp
Medical Camp
Dhule check up
Dhule check up
Medical Camp
Medical Camp
Tribute to Founder Secretary Dr.Dada Gujar
Tribute to Founder Secretary Dr.Dada Gujar
Speech Dr.Phadke Madam
Speech Dr.Phadke Madam
Dr.Phadke Madam
Dr.Phadke Madam
Vehicle Donation-Serum Insititute of India
Vehicle Donation-Serum Insititute of India

Attachments:
Dr.Kate
Dr.Kate

March 2014 Sickle Cell activities:- Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up camp from 29th to 31st March 2014. During the Pune to Dhadgaon journey we had medical checkup and medicinal kit was given to our 7 old diagnosed sickle cell patients at Dhule, Maharashtra.

On Sunday 30th March 2014, 310 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 97tribal individuals was done among which 39 were diagnosed as carriers and 27 patients were identified as sufferers. Advice and counseling regarding the dietary and behavioral regime was given to both old and new patients. The carriers were provided with counseling. Emphasis was given on pre/ post marital guidance.  The 31 individuals were diagnosed as without sickle cell disease were also guided for this socio-medical problem. 

On Monday 31st March 2014 the work started with the memory prayer of our mentor late Founder Secretary Dr. Dadashaeb alias S.T. Gujar. On this occasion the sickle cell team and the sickle cell patients prayed and started the work with the distribution of Nutritional food supplement and meal to sickle cell patients.On Monday 31st March 2014 similarly 278 old patients had been given examined and provided with medications and 57 new tribal individuals were screened for sickle cell disease. In newly screened 14 patients were diagnosed as sufferers and 33 were diagnosed as carriers and 10 individuals were diagnosed as normal i.e. without sickle cell.

In this sickle cell camp we had eye checkup from expert Opthalmologist of H.V.Desai Eye Hospital Pune. The 68 tribals undergone eye check up Essentials Medicines were provided. One patient was found to have multiple chorioretinal atrophic changes who was referred to Kantabai Shah Eye hospital at Nandurbar (unit of H.V.Desai Eye Hospital Pune)All the individuals were from different tribal parts of Nandurbar, Dhule district of Maharashtra and from the neighboring state viz. Gujarat and Madhya Pradesh mostly from low socio economic class.

Pune Public Health Conference 2014   was organised by School of Health Sciences, University of Pune 25th and 26th January 2014 in this a preconference seminar on Genetics in Public Health Systems was inaugurated by Dr.S.L.Kate Head Sickle Cell Department Maharashtra Arogya Mandal. In special Platform presentation he also delivered a lecture on Common Blood Genetic Disorders in India on this occasion

 

May 2014 Sickle Cell activities:-

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up

camp from 24th to 27th May 2014. During the Pune to Dhadgaon journey we

had medical checkup and medicinal kit was given to our 7 old diagnosed sickle

cell patients at Dhule, Maharashtra.

On Sunday 25thMay 2014 215 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 86 tribal individuals was done among which 51 were diagnosed as carriers and 20 patients were identified as sufferers. Advice and counseling regarding the dietary and behavioral regime was given to both old and new patients. The carriers were provided with counseling, emphasis was given on pre/ post marital guidance. The 15 individuals were diagnosed as without sickle cell disease were also guided for this socio-medical problem. During this camp each indexed patient was advised to screen his entire family members for sickle cell.

On Monday 26th May 2014 similarly 308 old patients had been given examined and provided with medications and 31 new tribal individuals were screened for sickle cell disease. In newly screened 3 patients were diagnosed as sufferers and 17 were diagnosed as carriers and 11individuals were diagnosed as normal i.e with out sickle cell disorder.

All the individuals were from different tribal parts of Nandurbar, Dhule, Jalgaon districts of Maharashtra and from the neighboring state viz. Gujarat and Madhya Pradesh mostly from low socio economic class. During this camp we distributed nutritional laddus to sickle cell patients. Also we have advised index patient to screen the entire family for sickle cell disorder.

1 eye check up camp
1 eye check up camp
Medical Check Up
Medical Check Up
Guidance for medicine
Guidance for medicine
Meal for the patients
Meal for the patients
2Sickle Cell Medical Check Up
2Sickle Cell Medical Check Up

Attachments:

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Organization

Project Leader

Mr Anil S. Gujar

Pune, Maharashtra India

Where is this project located?