Bring healing art to children in medical crisis

 
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Sep 20, 2013

You can't judge a book by it's cover.

Beautiful beaded necklace
Beautiful beaded necklace

For the past year, CHAP has been working with the Adolescent & Young Adult (AYA) oncology program at Knight Cancer Institute.  The AYA patients are between the ages of 15 - 39.  

The coordinator mentioned that a young man and his mother were both struggling with a recent diagnosis.  I went to that patient's door and introduced myself. He was alone. As I do with all patients, I listed the range of options I could bring to his bedside: watercolors, coloring mandalas, clay or jewelry-making. I could tell by his body language that he was going to accept something. He was on Day 6 of his stay. I think he was ready for some diversion.
Within a minute, he requested some beads. "I'll make something for my sister." Then he quickly followed with, "I should make something for my mom, too. Can I make 2 necklaces?" I gave him a resounding "Yes!" and scurried upstairs to gather the supplies.
He selected violet beads for his mom and green beads for his sister.  He told me their first names so he could customize the pieces with alphabet letter beads. When I came back to his room, he was sitting up and ready to work. I asked him if he had done any beading in recent years. He said, "Not since I was a kid." With the first necklace, he let me do the layout of the beads and he threaded them onto the string. By the second piece, he was in the driver's seat. He did the entire layout, with impressive attention to symmetry. We chatted a little bit and at other moments it was quiet. He mentioned at 2 different points that he was in excruciating back pain - but he never winced or groaned. He said it very matter-of-factly and then went back to the business at hand. For his third piece, he made himself a keychain.

By this point, we had been working together for well over an hour. A connection had been formed. He said to me, "Did you think I would say no?" Meaning - did I think he'd reject the opportunity to make art? I kind of chuckled. I said to him, "In the 4 1/2 years I have been doing this job with CHAP, I've learned to not make assumptions. You can't judge a book by its cover." I see this over & over again. The most rugged-looking cowboy from central Oregon will sit in the hospital and make beautiful beaded bracelets for his wife back at home. It's always a pleasure to see.  I've stopped being surprised.
There was one person in his life he still wanted to make something for - his aunt. Well, not technically his aunt, but rather a close family friend. She had been helping out with his hospitalization. She seemed an important player in his care-giving. I said, "Of course, you can make something for her. It sounds like she has been a great support to you." This woman recently had to return home, which was out-of-state. He said he would send it to her. He decided on red and clear crystal beads for his aunt and we put her name on it, too. He said that she was a source of steadiness, whereas his own mother was still reeling from the diagnosis. The aunt was both comfortable in the hospital setting and in her role advocating for him. She was calm and ready to do what needed to be done. She had that "one day at a time" attitude that CHAP hears so much about at the hospital. He appreciated this. He was clearly grateful to be buoyed up by his honorary aunt.
Towards the end of my shift, I went back to the patient's room to see if he had finished his final piece. Guess who was in the room? His mom and his sister - and they greeted me wearing their new necklaces. They were cheerful and delighted to receive their gifts. The mom was interested to hear about our AYA Bedside Art program. The patient was quiet now that his family was there. But I know he enjoyed it. I know he was glad he had said - 'Yes'.
Jun 27, 2013

Darkness Cannot Drive Out the Light

I find that there are no perfect words or ways to bring comfort to folks when they are experiencing pain and struggle. The best option for me is to provide my patients with an ear for genuine listening. Sometimes just a few words are expressed; sometimes it's simply facial expressions. And sometimes that is all that needs to happen to make a connection.

My co-art teacher had taken several 'room service' bead requests at one of our partner hospitals and I was making some room deliveries. My co-art teacher told me that I would really like the energy of the woman in room XYZ. When I opened the door, this wonderful woman was sitting in a chair next to her bed. Her name is “Tess” and she greeted me with a warm, crooked smile.

Tess shared with me that none of her family lived nearby the hospital and she was not very happy to be there as you can imagine. She had previously found out that she had cancer, but was treated and was in remission. More recently, Tess started feeling terrible and grumpy again. Her fears were made into reality when the doctors told her that her cancer was back, and this time she needed a bone marrow transplant. While Tess was sharing her story with me, she was altering her house slippers. She said everything [in her life] was just uncomfortable right now; her house slippers, her pants were too tight, just everything. 

Tess and I spent some time conversing and then I showed her the colorful plate of beads that I had to offer and her eyes lit up. She was happy to have a distraction. I told her that we would be back to check on her and that she could call for us anytime she needed more supplies. She looked up at me and thanked me. As I walked toward the door, she sweetly said, “I am hopeful that this hospital will get the cancer out”. I looked at her and said, “me too”. 

Apr 12, 2013

A moment in the life of a CHAP art teacher

 

I was in the Playroom when we all heard a child yelling very loudly from her room. She sounded like she was in agony. This child was yelling and crying so loud that everyone on the floor probably heard. All of us CHAP teachers wondered if the child was okay.  
 
Her mom was in the Art Room and said, "It's my daughter and she's mad because she wants her IV out. She also has Autism". The mom looked exhausted as she smiled.
  
“Can I try to go in there and talk with her?” I asked. 
Her mom was very appreciative and told me to go for it, but also gave me the look that seemed to say, 'Good Luck'. 
I went into the little girl's room and she was still just screaming her little head off! I said hello and that I was from CHAP and that I had some clay for her. She was screaming so hard her eyes were closed! She also had two black eyes and a large laceration across her nose. She was still screaming. I then repeated myself and told her that her mom told me she was an artist. I told her that I was an artist too. The screaming grew quieter and quieter and finally she stopped. I told her that she could come to the CHAP studio and do some painting with me sometime. She squinted her eyes at me and asked in such a sweet voice, "What's your favorite color"? 
 
I told her my favorite color was green. She shared that hers was red. I sat down on the floor with her squishing some red clay. We talked about her favorite things to make and what she would draw and paint when she comes to the CHAP studio. She said that she would draw a green-eyed tree frog! For those 15 minutes or so that I spent with her, she was able to relax. She could finally take her mind off of her IV and her time in her tiny hospital room, even if for a short time. 
 
This is just one little story of what it is like to work as an Art Teacher at the hospital. It is not an easy job, but it is a wonderful job. I believe it is magical to bring the Healing Power of Art to Children and their families.
Jan 13, 2013

Stories of art and healing

We (Children's Healing Art Project) have recently expanded our programs to serve the AYA population.  AYA is an acronym for ‘Adolescent and Young Adult’.  This program started on August 29, 2012.  The program offers one-on-one art for patients with assorted cancer diagnoses. 

I will share with you one tale from AYA.  On November 1st I was asked by the AYA Program Coordinator to check on a particular patient.  I will refer to him as Som.  I walked into his room.  Som was propped up in bed and had a tremendous amount of sutures in his scalp.  Most notably, he was missing part of his skull.  This was obvious because his scalp was sunken in this area.  The divet in his head must have been 5” in diameter.  After a brief moment of taking all that in, I introduced myself and asked the gentleman if he would like to make some art today.  It was extremely hard for Som to speak.  One of our initial exchanges was very belabored.  It took him quite a few tries to get the works out.  In the end, he was asking me to turn the light off in his bathroom.  Ah!  We had communicated.  I turned the light off for him.  As we spoke, he would at times get words out successfully and other times the words were indecipherable.  I sat with him and said, “Take your time.  Go easy on yourself.  You have been through a lot.  Be gentle with yourself.”  At one moment of intense frustration, he leaned his head back on his pillow and if to say, “It’s too hard to talk!”  He started to cry a little bit & I gave him a couple tissues.  Som did accept my invitation to do some jewelry making.  His hands were too shaky to thread the beads onto the string.  I said, “Don’t worry.  I can do it for you.”  So I would add a few beads and hold it up for him.  He would review my work and give me the green light to continue.   Som’s language has so clearly been impacted by whatever cancer has been affecting his brain.  At one point, Som’s nurse came into the room.  The nurse was very upbeat & friendly.  He asked me if I was making a good luck charm for Som.  I said, “That’s a neat way to think about it.  I suppose the answer is yes!”  I finished the necklace of amber, black & white glass beads.  I placed it around Som’s neck.  I said here is your good luck charm.  He started to cry again.  I took his hand.  And he squeezed my hand tightly.  I said, “I feel your strength. “  He was really holding onto my hand in a very meaningful way.  I said. “I am glad we got to work together.  I am glad I got to sit with you for awhile.”  I exited the room and my head was reeling.  It had been a very profound interaction.  I think Som was sincerely grateful to have someone sit by his side and witness what he is going through. 

The following Thursday, when I went to do AYA Bedside, Som was there again.  He was in a different room this time.  A plate must have been placed back in his skull.  It was no longer sunken.  Guess what was around his neck one week later?  The good luck charm we had made together.  His spirits were better.  It was still frustrating for him to talk, but we managed a version of a conversation.  We made another necklace.  When finished, I asked if he wanted me to take off the 1st necklace and put this new one on him.  He said no.  He wanted both on at the same time.  I reached around his head and put the second necklace on him.  He told me that he was expecting to get discharged either that night or the next day.  He didn’t cry this time.  He just said, “I’m going to miss you.”

Oct 14, 2012

Art and Healing

I’d like to tell you tell you about a very powerful Wednesday we recently had at a couple of our partner hospitals:

 

To start the day there were no kiddo’s at our first location.  I invited twin sisters (probably in their 60's) playing Angry Birds on their smart phones to come join in on a little art making. In the meantime, two other women came in, one of them a patient in a wheelchair the other her sister. No one in the room could escape the negativity from the argument they were having. I offered beading to them out of sympathy and to lighten the mood.  One jumped at the idea...the other complaining the entire time, but still taking the beads. Finally, one of the twins joins them, also trying to diffuse the situation. Her sister soon joins in, just as pleasant and uplifting as her twin...they make identical necklaces and felt birds and we parted having exchanged information.  By the end of our session the argument between the second pair of sisters had been completely forgotten about by the pleasant conversation and they were able to make some wonderful jewelry...eventually some kiddo’s joined in and what started as a rough morning became a colorful and fun day.

 

Upon arrival to our second location that day, there was a note taped to the art cabinet door from a nurse. It said

"To the Art and Craft Lady” -The family of a patient who passed away in September wanted to "thank you so much" for all you did to help his children while he was in here.  I remember him as the kindest father of a large family.  He and his wife had adopted some foster kids with special needs, and had some of their own. While he was in isolation at the hospital, we would feed projects in with his four children, wife and aunt. They had been thrilled and grateful to have something to do while at the hospital, and they were finally able to go home with the good news that he was in remission.  The nurse told me he had passed away very suddenly due to unexpected complications.

 

The afternoon continues and we have a good crowd at the table, beading and painting. I passed a woman in the hall in obvious distress and told her she was welcome to come in and join us. She was crying and said they had just had gotten bad news about her husband. Without thinking, I said that sometimes that was the best time to come in. She thanked me and walked off and I felt ridiculous for having even suggesting that I could possible know what is the best thing at a time like that. The Ugly Cancer.

Five minutes later, her entire clan came in one by one: the grown children, mother, his niece and her boyfriend, sisters and the granddaughter. All of them beaded.  Some of them painted quilt squares with the patient's name for a fabric art quilt to hang in the room where we have the art making. The mother of the patient was silently sobbing as she beaded her bracelet in the corner...but she recovered and came over to sit with her family as they made art.  There was laughter and good teasing, and there was joy in a sorrowful place.  This is the center of what we are all about!

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Project Leader

Roxie McGovern

Portland, OR United States

Where is this project located?

Map of Bring healing art to children in medical crisis