Have you ever met someone new, but, after spending a short period of time with them, felt like you’ve known them much longer? That was the experience of the Jacob’s Fund team when they met little Kyle and his family two short weeks ago.
Glenna, Jacob’s Fund Director, and Sonya, TRTP VP, drove to a quiet Cincinnati suburb to meet the newest recipient of a Jacob’s Fund ridership (aka a hippotherapy scholarship). The pair was warmly greeted by Kelli, Kyle’s mom, and welcomed into a very neat, organized home. After learning that both a 6- and 7-year-old live in this space, the ladies were amazed at how tidy everything was! Kelli was quick to explain that keeping a neat home creates a peaceful space for both her son and herself.
We asked her to explain and tell us more about Kyle. Beaming with love, she proceeded to help us get to know her unique little boy, all the while keeping a watchful eye on her children.
Kyle is an adorable blond haired, blue eyed, 7-year-old with a radiant smile and infectious laugh. He adores music, especially catchy gospel songs performed by the young people on one of his favorite videos. He recognizes and can point to all of his ABCs and 123s as well as his colors, small victories for children much younger than him, but colossal milestones for someone with his challenges.
At an early age, Kyle was diagnosed with Pervasive Developmental Disorder Not Otherwise Specified (PDD-NOS), which is characterized by delays in the development of socialization and communication skills, typically noted before 3 years of age. Symptoms may include problems using and understanding language; difficulty relating to people, objects, and events; unusual play with toys and other objects; difficulty with changes in routine or familiar surroundings, and repetitive body movements or behavior patterns. Unusual responses to sensory information, such as loud noises and lights, are also common. (Excerpts from the National Institute of Neurological Disorders and Stroke)
Kyle also has epilepsy, a seizure disorder that affects the nervous system and is characterized by two or more seizures from an unknown cause. (Paraphrased from Epilepsy.com) In addition, he has hypotonia—low muscle tone—which creates balance issues causing him to fall easily.
Upon understanding that this little man has these conditions, we instantly understood the need to maintain a tidy house. Not only is the house kept in a way to maximize Kyle’s safety, but to honor his internal need for order. He likes chairs to be pushed in, doors to be closed and no clutter. It was evident to us that his parents care deeply about preparing and maintaining the best possible environment for their eldest child.
Now that you’ve met Kyle, maybe you feel like you know him too. Stay tuned for our next report that explains why Jacob’s Fund has taken an interest in this exceptional child!
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