Finding treatments & cures for childhood illnesses

 
$23,121
$1,879
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Mar 10, 2014

Learning to live with burns

Jade's Story

When Jade was four years old she was burnt by a cup of coffee. This led to her undergoing numerous treatments, including wearing a pressure garment, for four years. Jade’s mum Nicky tells us about Jade’s story and explains how the Sparks research looking into the treatment of burns could help other children.

“Jade was four at the time and was at my auntie’s house when I got a call to tell me she had been burnt and that she was being taken to hospital. Jade had been in the kitchen when she had accidentally picked up a cup of coffee which had spilt down her. I rushed to the hospital where Jade was being bandaged and treated for the burns. We were told Jade wouldn’t be admitted but that we would need to come back the next day to get her bandages changed.

We went back to the hospital for the next few days and had Jade’s bandages changed. On the third day of going, the consultant was carrying out his rounds as normal but when he looked at Jade’s burns he explained to me that they were deeper than they had originally thought. Jade was referred to the Queen Victoria hospital in West Sussex, who deal specifically with the treatment of burns.

“When we arrived at the Queen Victoria, Jade was almost immediately given morphine and her burns were photographed.”

A couple of days later she underwent a skin graft and then stayed in hospital for a total of ten days, with me staying in the parent’s annexe. This was a particularly hard time for us, it was incredibly difficult to see my daughter in such pain and having to deal with the severity of the burns, which we had originally thought were mostly superficial, was very worrying.”

 

Wearing a pressure garment

“About a month after Jade’s skin graft we had an appointment with the occupational therapist who told me that Jade would have to wear a pressure garment.

“A pressure garment is a skin coloured bodysuit which compresses the burn scars to make them softer, paler and flatter.”

I have to admit when I first saw the pressure garment I was shocked that Jade would have to wear this 24 hours a day, seven days a week.

Along with the pressure garment I needed to massage Jade’s burns with a special cream three times a day. Jade and I would get up early to do this before school, then again when she got home and finally just before she went to bed.

I think wearing the pressure garment was one of the hardest parts of Jade being burnt. When we were out in public, people would often stare at it and wonder why, particularly in summer, she had to wear this. Jade was too little to notice this but it was something which particularly upset me. I don’t think Jade could have been better at coping though, she never once complained about wearing the pressure garment or being too hot in it. This was a great comfort to me and just showed what a headstrong little girl Jade was and still continues to be.

Jade wore the pressure garment for four years; her scars have now matured and healed to a natural skin colour so she no longer needs to wear the garment. The burns are still noticeable but for Jade it doesn’t really seem to bother her. When children at her school ask her about the burns she is happy to tell them how she got them. She really enjoys swimming and a lot of other sports like badminton and horse riding and she is happy to throw herself into these, it hasn’t changed her or her confidence at all. She also attends a camp with children from the burns unit at Queen Victoria and this has been a great support both to her and me, as I have met the parents of the children with burns like Jades. Just knowing that others have been through what we have has been of comfort to me.”

 

Changing the future for children like Jade

“Knowing about the Sparks research which looks to treat burns in a better more effective way is really amazing, particularly after everything Jade and I have been through. It would have made a big difference to Jade, not having to undergo the skin graft which was quite a traumatic procedure for her at such a young age. Having a simpler, more effective treatment would hopefully mean children could recover more quickly and get back to their normal lives faster.

It’s great to know Sparks are working hard to improve treatment for children, any change that could me made, even for just one child, could really make a difference.

 ”I’m so pleased to support Sparks’ mission and hope sharing our story can give hope to others.”

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Eleanor Windle

Miss
London, London United Kingdom

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