This project sends 10 families, who could not otherwise afford to attend, Epilepsy Awareness Day at Disneyland Resort on November 6, 2014. Many families dealing with the stresses of epilepsy/seizures are exhausted, both emotionally and financially. Many are single-parent or one-income families because of the care needed. They deserve a break!!! Hotel rooms for 10 families have already been donated. We need your help with travel expenses to make this happen! CHF grants comfort and hope!
What is the issue, problem, or challenge?
So many families and individuals living with epilepsy are isolated and financially strapped. Because epilepsy is so misunderstood, families fight daily for the help they need. Many are single-parent or one-income families who work incredibly hard to make ends meet. Add high medical costs, the care and equipment that can go along with an unstable individual, the burden is high. It is not uncommon for a family to have a loved one who seizes 50-100 times a day.
How will this project solve this problem?
Community is incredibly important when you are faced with the challenges of caring for a loved one with seizures, or are experiencing them yourself. Last year this Foundation sent (2) families to participate, one family of (4) from CO and another single mother and her son from TX. It was a once-in-a-lifetime trip for them and opened their world to an amazing community who continues to provide support to them. In addition, tickets were provided to (5) other CA individuals who participated!
Potential Long Term Impact
Seizures can strike anytime, announced or unannounced. Imagine the stress of always wondering what is around the corner. Seizures can be deadly - this Foundation was created in memory of a beautiful 16-year girl who lost her life to a seizure one night in her sleep. The stress is overwhelming and, unless you live with or love someone who suffers with seizures, it is hard to explain those struggles. This project brings a little ray of sunshine to families in need.
Total Funding Received to Date: $745
Remaining Goal to be Funded: $24,255
Total Funding Goal: $25,000