Devendra (Dev), chronological age (CA) 3+ and (MA) mental age about 9 months, is one of our new admissions in our Early Intervention Unit and is an example of how ignorance and lack of awareness has denied Dev the chances of possible improvements. Had the problem been diagnosed and treatment started in the early stages, perhaps Dev’s life would have been different.
Dev came to SAMADHAN in October 2012. His parents are farmers in a village, in the State of Rajasthan in northwestern India, which borders Delhi. Born in the village hospital, the pregnancy and delivery both were normal except for the fact that he did not cry till about 12 hours after birth, according to his mother Savita. Till the age of six months, Dev didn’t show any signs of growth and had not developed skills like neck control or other activities a baby learns and responds to. The local doctor pronounced him to be a slow and mentally retarded child but apart from this gave no useful information or support. After about a year, a brother, a normal child, was born. By the time Dev was two and a half, no progress was seen, and on comparing him to his brother, family realized that something was wrong. So Dev was taken to a well-known hospital in the city of Jaipur and he was diagnosed to be affected withcerebral palsy.
Learning the gravity of the problem, Ved Singh, Savita’s brother, working for a medical store in Delhi, invited her and, in August, took Dev to AIIMS (All India Institute of Medical Sciences), Delhi, which is one of the best government-run hospitals in India, for a better and reliable treatment. At AIIMS, Dev had to undergo many tests and detailed investigations and the needed treatment was started.
During one of her regular visits to AIIMS, Savita learnt from another visiting mother, about SAMADHAN and its therapy services. She took Dev first to Dakshinpuri centre of SAMADHAN and then came to Dwarka centre, which is quite close to her brother’s place where she is staying.
Now Dev is a regular visitor to our Therapy Unit and is undergoing stretching and positional therapy. In about 2 months the visible improvement seen so far is some neck control and the muscle strengthening. He responds and smiles when we speak to him. His mother is also counseled and her doubts and questions answered.
Little Dev is slowly showing signs of improvement, and through passage of time with regular therapy sessions, we are hopeful that he will gain skills to lead an independent life.
We thank Global Giving and all the donors for their contribution and request continued support which will help many such children like Dev to benefit from timely therapeutic interventions.
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