The team at Dry Fly Distilling will be riding their bikes from Vancouver, BC to San Diego, CA in an effort to raise critical research funds and awareness around Rett Syndrome, a rare neurological disorder that strikes young girls. The funds raised thru the ride will be used to help fund research and family support programs funded by Casting 4 A Cure and The International Rett Syndrome Foundation. Dry Fly is a proud sponsor of Casting 4 A Cure.
Rett Syndrome is a rare neurological disorder that affects 1 in every 10,000 girls. It is a very debilitating disorder that robs what seems to be a normal girl of her ability to speak, radically affects their gross and fine motor skills, and is life threatening.
The Dry Fly Ride for Rett Syndrome will help to fund both current and upcoming research projects and clinical trials to find a cure for Rett Syndrome. Rett Syndrome affects approximately 1 in ever 10,000 children.
The long term impact of finding a cure for Rett Syndrome is far-reaching as such a breakthrough would lead to advances in other neurological disorders like Autism, Parkinsons, and Cerebral Palsy.
Total Funding Received to Date: $1,390
Remaining Goal to be Funded: $18,610
Total Funding Goal: $20,000
This project has provided additional documentation in a PDF file (projdoc.pdf).