I first saw Pasha in the autumn. He came with his mum to our Club. Pasha was 2 years-old then, and he was a very timid little boy, with a nervous smile and awkward movements. He just couldn't make up his mind to come into the room where all the children, with their mums, were dancing, singing and having fun. Pasha just peeped through the door and then went back into the corridor. It was obvious that he wanted to be with everyone, but either fear or indecision held him back.
Then I took a few toys and went out to him in the corridor. His mum was sitting down, tired, while Pasha lay on a share and rhythmically rocked himself looking at the ceiling. Apart from the lights, it didn't look like anything interested him. His mum explained, "for the first two years, Pasha couldn't walk. At all. He moved around on his back, orientating himself by the ceiling".
I said, "One! Two! Three! Lights go out!" and I switched off the light. Pasha turned to look at me. I asked him, "Shall we turn the lights back on?". In reply he smiled and I understood that that meant "Yes!". Again I said, "One! Two! Three! Lights come on!". We repeated this many times, and this is how we began to get to know one another.
Pasha's mum told me their story. Not knowing that she was pregnant, she took the flu vaccine, which, according to her doctor had sad consequences. Her little boy was born with multiple developmental disabilities, including damage to his inner ear. "We knew that he would be born with problem. The scan told us that. But his father and I decided not to abandon our son". Despite their dedication, however, his parents were having trouble understanding Pasha's signals.
Step by step, Pasha started getting more involved in the Club's activities. To begin with he would come and join in for just five minute, then fifteen . . .
Now, Pasha comes before all the others and listens to music, dances, plays, and draws with all the others. He gets up to lots of interesting and important things. Most of all he loves to dance the waltz!
Pasha's mum also smiles now. She notices and is proud of her son's achievements and says to him, "Well, Pasha, I didn't think that you had it in you!".
Our Club is the only place where Pasha and his mum can be supported. Without such support more parents may abandon their disabled children to orphanages. You can help more children, if you donate on Wednesday 12th June, when GlobalGiving will add 40% to your donation so it will buy even more food for us. This applies to all donations up to $1,000 made through globalgiving.org (not the UK site) after 9am EDT (2pm in UK) until midnight EDT or when matching funds run out
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