Help thousands get kidney disease treatment

 
$10,600
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Happy Holidays from Nicaragua! The La Isla Foundation staff and volunteers recently celebrated Thanksgiving here and we have our gratitude for your support more in mind now than ever. Sincere thanks to each and every one of you. Without your support, our work would simply not be possible.

Our work to improve the quality of renal care for those affected by Chronic Kidney Disease of Non-Traditional Causes (CKDnT) is a marathon, not a sprint, and we continue to move forward. The planning stage of our Peritoneal Dialysis (PD) program evaluation project is coming to an end and we are excited to be closer to collecting data and carrying out the evaluation. Only with a thorough evaluation of the PD program in Chinandega will our research team be able to develop recommendations for necessary improvements to this life-sustaining treatment.

As we’ve highlighted before, this project is especially important because of its focus on treatment for those who need it right now. In a socio-economic context where transplant is not feasible, dialysis is the only life-sustaining treatment for those in the final stages of CKDnT. Without it, the patients dies.

I spoke recently with the principal investigator of the PD project about the current low survival rates on PD and he reminded me of the most basic value of dialysis. Even in its current state with much room for improvement, he emphasized that every week spent on dialysis is a huge success because for that patient it means another week of life that otherwise would not be afforded to them. This time is invaluable and emphasizes the overwhelming need to improve the PD program. Though not a cure, an improved PD program can be a life-extending solution for the thousands of men affected by CKDnT in Chinandega now.

Coming up on this holiday season, as you spend time with your loved ones, please reflect on and take pride in the fact that your generosity is helping improve the treatment that will allow these families to spend more precious time together.

We can not thank you enough for your continued support of our project.

Sincerely,

The La Isla Foundation Public Health Team

Photo by: Laffay- La Isla Foundation
Photo by: Laffay- La Isla Foundation

Our work to improve life-extending treatment for those sick with Chronic Kidney Disease of nontraditional causes (CKDnT, formerly CKDu) is moving forward. To improve quality of care for those suffering in CKDnT’s final stages, which are also the final stages of life, we must start evaluating the current peritoneal dialysis care landscape. La Isla Foundation (LIF) is working with our partners at the National University of Nicaragua in Leon (UNAN Leon) and others to do a comprehensive evaluation of what is happening. With those findings we will be able to come up with treatment recommendations to improve treatment and hope to implement those changes in the future.

This project is unique because we are working to improve treatment options for people who are sick with CKDnT right now. Most current research is focused on the long-term goal of prevention, which relies on understanding CKDnT’s exact cause(s).Those research initiatives, although critical, have a much longer timeline and have little impact on those who are currently sick. Conversely, LIF’s project will improve the lives of people who are sick now, like Juan in the photo above.  He is self-administering peritoneal dialysis four times a day, every day. This photo was taken in his home is less than ideal conditions.

The findings of our research will help extend the time that sick fathers and husbands, like Juan, can be with their families.

Although it is a slow process, step-by-step, LIF is helping those who are sick, while we also work to end this epidemic. Most importantly, we could not do this critical work without your support. Thanks again!

Sincerely,

The whole team at La Isla Foundation

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BIG THANKS to all of you who have supported this project! You are part of improving vital healthcare in Nicaragua. And as we mentioned before, without your support we never would have received a huge grant from Baxter International, which is really pushing this project in a huge way!

Right now the Public Health Team is in El Salvador to meet with the Institute of Health and several nephrologists. El Salvador is also affected by the CKDu epidemic, and we're learning from them how they have improved healthcare in their country. We’ll take these lessons back to Nicaragua to ensure better kidney care!

Thanks again!

-La Isla Foundation

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Dear La Isla Foundation supporter,

 

I want to take this opportunity to thank you. You are one of over 100 people who contributed to improve kidney healthcare in Nicaragua. We are incredibly grateful to you for your support.

 

This year is already off to an amazing start. This week we were awarded a research grant from Baxter International-- $17,294 to support this project. The approval letter informed us that our proposal was one of eight selected from a very competitive group of fifty-two submissions from around the world!

 

We could not have gotten this grant without your support. 

 

Baxter believed in us because of the work you made possible. Thanks to you, we have started to make big steps in sustainable, long-lasting improvements in kidney healthcare in Nicaragua.

 

Your donation has truly been an investment in healing this community affected by the chronic kidney disease epidemic.

 

Thank you all so much again! We will keep you informed about new exciting developments.

 

With gratitude,

Dorien and the rest of the LIF Public Health Team 

Through the generous support of Global Giving, La Isla Foundation was able to open English classes to 5th and 6th graders in the La Isla community in rural Nicaragua.  As their school year draws to a close at the end of this month, the dramatic change in our students is more than could ever be imagined.

All students in our classes are now holding begining conversations in English, enough to introduce themselves and meet someone new.

Joselyn, a student whose father had died from working conditions just months before school started, came out of her shell through English classes and has begun to not only participate in classes, but participate in the school yard fun activities as well.

Boys who in the begining of the year talked about their futures in the fields now report desires for better jobs and better treatment in the work place.

Students, through out presentations, are not just gaining a knowledge of different oppotrunities and livelihoods, but gaining an appreciation of choice.

The purpose of these classes were to train rural, underprivilated children in English and prepare them for jobs in offices and away from the field work that has taken the lives of their fathers and brothers.  As we've seen through the school year, it has done so much more than that.  These children are given an opportunity to improve not only the length of their lives, but the quality as well.

We greatly appreciate the support we have recieved this year through the Global Giving campaign and are excited to see how far it continues to take out participants in the upcoming years.

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Funded

Combined with other sources of funding, this project raised enough money to fund the outlined activities and is no longer accepting donations.

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Organization

Project Leader

Dorien Faber

PD project coordinator
Leon,, Leon, Nicaragua

Where is this project located?

Map of Help thousands get kidney disease treatment