Casting 4 A Cure- Help Us Cure Rett Syndrome

 
$90,384
$4,616
Raised
Remaining
Oct 18, 2012

Casting 4 A Cue Project Update September 2012

Hello everyone, hope you are had a great Summer and are getting ready for a nice Holiday season.  

We are really looking forward to wrapping up what has been a great year in 2012 with respect to helping fund critical research projects for Rett Syndrome.  Despite having to cancel our annual Steamboat CO event this year due to low water levels in the state, our Victor ID and Bar Z Ranch 2012 Casting 4 A Cure events were sold out and a tremendous success.  We had a number of donors who were incredibly generous in both their financial donations as well as their time put against helping ther cause.  

October is National Rett Syndrome Awareness Month and with that we are excited to deliver over a donation of $70,000 to the International Rett Syndrome Foundation.  We will continue to concentrate our efforts on funding the 1st phase of the clinical trials for the drug NNZ-2566 (http://www.rettsyndrome.org/content/view/848/1147/) which are being held in conjunction with Children's Hospital in Housto.  Neuren Pharmaceuticals has joined with the Baylor College of Medicine to test NNZ-2566 in a proposed Phase I and Phase IIa clinical trial. This proposed trial, along with the IGF-1 trial at the Children's Hospital in Boston, are trials designed to investigate whether these compounds can reverse some of the symptoms of Rett syndrome and modify the progression of the disorder in our Rett children. This announcement portrays the importance of partnerships between industry, academia, and private foundations like IRSF to accelerate bringing forward clinical trials specific to Rett syndrome.

Thank you again for your support and we are really excited about all the things in store for Rett Syndrome research and Casting 4 A Cure in 2012.

 

Bill Farnum

Links:

Jul 18, 2012

Casting 4 A Cure update -July 2012

Hello everyone, hope you are having a great Summer!  

We are really looking forward to a great year in 2012 with respect to helping fund critical research projects for Rett Syndrome.  All of our 2012 Casting 4 A Cure events are currently sold out and we are at maximum capacity!  Great news as this should really help us hit our fiscal goals this year of donating $100,000 to the International Rett Syndrome Foundation.  So far  this year we have donated $30,000 to the International Rett Syndrome Foundation.

We will concentrate our efforts on funding the 1st phase of the clinical trials for the drug NNZ-2566 (http://www.rettsyndrome.org/content/view/848/1147/) which are being held in conjunction with Children's Hospital in Houston.  Neuren Pharmaceuticals has joined with the Baylor College of Medicine to test NNZ-2566 in a proposed Phase I and Phase IIa clinical trial. This proposed trial, along with the IGF-1 trial at the Children’s Hospital in Boston, are trials designed to investigate whether these compounds can reverse some of the symptoms of Rett syndrome and modify the progression of the disorder in our Rett children. This announcement portrays the importance of partnerships between industry, academia, and private foundations like IRSF to accelerate bringing forward clinical trials specific to Rett syndrome. 

Thank you again for your support!

Bill

Links:

May 3, 2012

Casting 4 A Cure- 2012 Outlook and Projects

Hello everyone, hope you are having a great Spring!  

We are really looking forward to a great year in 2012 with respect to helping fund ciritcal research projects for Rett Syndrome.  All of our 2012 Casting 4 A Cure events are currently sold out and we are at maximum capacity!  Great news as this should really help us hit our fiscal goals this year of donating $100,000 to the International Rett Syndrome Foundation.

We will concentrate our efforts on funding the 2nd phase of the critical EGF1 Growth Hormone clinical trials which are being held in conjunction with Children's Hospital in Boston.  The first phase of the trials have shown some very positive results and we are looking forward to seeing what the second phase has in store.

Thank you again for your support!

Bill

Jan 3, 2012

Casting 4 A Cure 2011 Year End

Hello all, I hope you and your friends and family had a very Happy Holiday season.  We have been so blessed this year with the incredible generosity of our donors in 2011.  Casting 4 A Cure exceeded our overall 2011 goal of raising over $150,000 for Rett Syndrome Research and support.  We were so excited to be able to fund some incredible projects with your help.  We have a list below of some of the highlights.  

  • We were able to donate over $110,000 to the International Rett Syndrome Foundation to fund numerous critical and cutting edge research grants and family support programs.
  • We donated $12,500 to Denver Childrens Hospital to help start the Rocky Mtn. Rett Syndrome clinic
  • We were able to help pull Rett Syndrome families together in the Northwest by funding the Northwest Rett Syndrome Family Symposium.
  • We raised awareness of Rett Syndrome to thousands of individuals.

We have set some aggressive goals for 2012 as well, with a target of raising $175,000.  We are so happy and grateful for your partnership and looking forward to partnering with you as we get closer to a cure for Rett Syndrome.

Sincerely,

Bill Farnum

Links:

Oct 10, 2011

Casting 4 A Cure update

Ken Dice and Elliott Hill of Nike at the Bar Z
Ken Dice and Elliott Hill of Nike at the Bar Z

Hi everyone.  It's been an incredibly busy summer for Casting 4 A Cure, thats for sure!  In the last four months we have held three events, been the focus of a new television documentary, and was the beneficiary of the 2011 Nike Sales Meeting silent auction.  In total, we have raised over $100,000 in 4 months for Rett Syndrome research and family support. 

We would like to send a tremendous thank out to all who have supported the cause and we are looking forward to a phenomenal 2012 with additional events and a goal of $150,000 in donations...

Thanks and please help us get one cast closer to a cure!

Bill

Links:

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Project Leader

Bill Farnum

Sherwood, OR United States

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