The increase of MDR-TB cases is on the increase in TB high burden countries including our own -Uganda.
With support from global giving supporters,SORAK Development Agency has added to her strategy of creating awareness and social mobilisation to include house to house tracing of all defaulters.
This is achieved through working with health workers who provide information to SORAK staff on individuals who have defaulted.SORAK reaches out for these and a good case recently successfully traced is here attached.
If we get more support to enable us travel to hard to reach rural locations,we shall be able to trace more and more of such cases which are contributing to the burden of MDR-TB in Uganda.
Since the second quarter SORAK team has shifted her attention to undertaking home visits to TB patients. We are however disappointed to note that drug seeking behavior is still very poor among men. In this period, we lost one TB patient whom we discovered from a deep rural hard to reach area. A combination of long distance to health facility and high levels of stigma amidst limited awareness that TB is curable contributed to death of our member. SORAK discovered this young male of 32 already devastated by HIV/AIDS with the onset of TB. Our effort to encourage him to seek treatment did not yield good results as it turned out to be too late to save his life. We shall need to enhance this household and community based advocacy to ensure that such patients are discovered and referred for treatment in time. We will also continue to engage with the district authorities to ensure that health service delivery is improved including improving the functionality of rural health units. This is where an extra dollar is needed to make our team reach out to more vulnerable members in hard to reach localities.
In preparation for an effective and evidence based community based TB advocacy, SORAK carried out a Knowledge, attitude and practice survey on TB services in TB endemic hard to reach localities in Mubende -January 2013.
Evidence from this survey findings lead to the fact that, Lack of empowerment is a constraint to prevention and utilization of health services for TB. At community level, women and families do not know what their rights and responsibilities in as far as health services are concerned and are therefore not equipped to prevent disease, seek and demand timely, appropriate and quality health care. These factors are also compounded by cultural beliefs and practices and related low economic status of rural flocks.
Rural TB patients do not know their health rights and are not empowered to demand for them. They therefore rely on support from partners, families and the entire community. In the process of seeking care, TB patients health rights are consistently abused sometimes leading to morbidity and death which could be avoided TB patients and their care givers were equipped with knowledge and capacity to demand for quality and accountability from duty bearers including health providers, policy and decision makers .
Considering the availability of resources, SORAK will this year focus primary, specific and particular attention to illiterate rural women, men, girls and boys as they were found to have relatively high prevalence of TB health indicators. Home based house to house advocacy campaigns with be emphasized during this period. An extra dollar will enable us reach more homes.
As SORAK Development Agency held a community based AIDS day celebration,December 1st 2012, for her TB advocacy campaign in Mubende, TB survivors and those on treatment used it as an appropriate opportunity to encourage government, district and local authorities to give TB case finding and treatment the priority it deserves.
‘’It is not acceptable for us poor people to continue dying from treatable diseases’’ asserted a survivor.
He observed that it was disheartening to note TB services are an area that has been neglected for so long. He spoke vehemently asking the policy makers to ensure that no more people die of TB in our community. He pledge to work with other TB patients and SORAK to react out to more persons who could be danger of having TB,advise them to seek testing and eventual treatment. He thanked SORAK and her supporters through global giving.
He was hopeful that with further support more marginalized TB patients would be reached;
Dear supporters, it is perhaps your next dollar that will bring hope to other members who are vulnerable to TB but not yet reached. Support us to reach them in the last mile of our underserved villages
SORAK has embarked on mobilizing for a group of activists including: clinicians, investigative journalists, implementers, NGO/CBO and policy makers to focus our struggle against tuberculosis (TB) on achieving zero TB deaths, zero new TB infections, and zero suffering from TB.
Members are committed to zero TB deaths, zero new TB infections, and zero TB suffering and stigma, because:
We feel that it is Political will and commitment by Governments and communities that are the driving forces that enables communities and countries with high burdens of TB to reduce deaths, infections, and suffering. With your support, SORAK is confronting the social determinants of this disease that affects mostly the poor and marginalized.
There is however a need for increased resources critical to achieving community engagement on all fronts in order to achieve zero TB deaths, zero new TB infections, and zero suffering from TB
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