This project will change the life of a little boy who suffers with several different types of seizures. Seizure response dogs are a special type of service dog, specifically trained to help someone who has epilepsy or a seizure disorder. The Chelsea Hutchison Foundation is currently fundraising to be able to provide a grant to Damien and his service dog in training, Akuna.
What is the issue, problem, or challenge?
Damien is an amazing 6-year old boy. He loves sports, family and friends. He has JME (Juvenille Myoclonic Epilepsy), but it hasn't stopped him. Sadly, Damien lost his beautiful sister, Kim, to SUDEP (Sudden Unexplained Death in Epilepsy) in 2008. In addition, his Mother has also been diagnosed with Epilepsy, so they rarely get a break. Damien's family lives in a constant state of exhausting worry and stress.
How will this project solve this problem?
Akuna is currently in training for Damien and should be finished sometime this Fall (2014). Akuna will be used to alert Damien's parents or teacher when a seizure is occurring, retrieve rescue meds and be with him to offer both comfort and reassurance throughout his seizures and to keep him calm. Akuna will also be another set of eyes allowing Damien to recognize safe boundaries. In addition, Akuna will be trained to press an able phone that calls 911 if needed.
Potential Long Term Impact
Our goal is to get life-saving measures in line for all who could benefit from them. By raising SUDEP (Sudden Unexpected Death in Epilepsy) awareness, our hope is to get epilepsy research on the radar. Most believe that if you have seizures you can take a pill and be cured. Truth is that only 1/3 of those with seizures are controlled by medication. For many, multiple seizures are an every-day part of their life. 1 in 26 will be diagnosed with epilepsy in their lifetime.
This project has been retired and is no longer accepting donations.
Every microproject is intended to use the donations it receives in accordance with its stated description; however, it is important to provide project leaders with the flexibility to maximize the potential benefit from the donations they receive. This means that your donation may be used as a part of the main project that supports this microproject, specifically Seizure-Response Dogs for those with Epilepsy. In this event, the project leader is required to post an update to the microproject detailing the results and reasons behind this change.
If you or any other donor is unhappy with the way their funds have been used, he or she can reallocate their donation using the GlobalGiving guarantee.