Ryan House

The mission of Ryan House is to provide respite and palliative care to children with life-threatening conditions and, as needed, end-of-life care. For Arizona families with a child suffering from a life-threatening condition, the services are vital to the families that must care for the child 24/7. The children served at Ryan House suffer from conditions that cause significant functional impairment and are diagnosed by medical professionals to be irreversible and terminal.
Apr 26, 2013

Ryan House Shining Star- Trinity

Trinity
Trinity

Meet our Ryan House Shining Star, Trinity

Shortly after learning she was pregnant with triplets, Heather was told her three children, Sebastian, Trinity and Estellah, had only two placentas. At 28 weeks, Estellah passed away in utero and Trinity began having strokes and her kidneys stopped developing. While Sebastian was born healthy at 35 weeks, Trinity was diagnosed with Cerebral Palsy and terminal renal failure with a life expectancy of 15 months.

“The day I stepped into Ryan House is the day I became a woman again,” Heather said. “When you have a child with special needs you not only become a nurse and caregiver but also an advocate, making all the hard decisions. Now a single mom, I don’t have someone to talk to or share things with. Ryan House has given me the security and confidence to go forward. We are progressing every day, hopefully there will be no more cloudy days but if there are, well, it’s ok.”

When Trinity is at Ryan House she loves spending time in the sensory room with volunteers.  You can also find her strolling the halls and the fully accessible playground.  

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Jan 3, 2013

Ryan House Shining Star- William

William
William

At birth, William George Leon weighed only two pounds, 14 ounces and just 14 inches long. He was born with an unknown genetic syndrome, with multiple congenital anomolies (birth defects) and was diagnosed with over eight rare medical conditions. Now 18-months-old and weighing 18 pounds, William has endured 15 hospitalizations, eight surgical procedures and has 14 core physicians following his medical care.

William is the sweetest boy, has a tiny little smile and laugh that would light up anyone’s world. His big sister, Isabell, also has special needs and medical issues including a heart defect, hearing and visual impairments, as well as overall developmental delays.  The family feels very fortunate to be able to take William to their beloved Ryan House especially when Isabell is at the hospital for another surgery. “Every night we are reminded of the gifts in our life,” mom, Crystal, said. “Among them are Isabell, William and Ryan House.”

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Oct 16, 2012

Ryan House Shining Star

Mikaela
Mikaela

Ryan House Shining Star Mikaela

Not expected to live past six months, Mikaela is the bravest 3-year-old you’ll ever meet.  Born with a severe heart defect, pulmonary artesia and one kidney, she requires 24/7 care. Her family has tough decisions to make relating to Mikaela’s quality of life.

“I thought respite was like hospice, but the first thing we noticed was Ryan House felt like home,” mom, Melody said. “During our tour our jaws dropped, it was like a resort! I was never more nervous than the day we booked our first stay but within days we booked a second visit. Ryan House gives me time to rest and brother, Giovani, time to shine, he loves the PlayStation and all the attention he receives and so desperately needs. Now when we need a break, I can just bring Mikaela here with all of her friends. Whoever thought of Ryan House is truly brilliant and we will be forever grateful.”

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