Ryan House

The mission of Ryan House is to provide respite and palliative care to children with life-threatening conditions and, as needed, end-of-life care. For Arizona families with a child suffering from a life-threatening condition, the services are vital to the families that must care for the child 24/7. The children served at Ryan House suffer from conditions that cause significant functional impairment and are diagnosed by medical professionals to be irreversible and terminal.
Jan 2, 2014

Ryan House Shining Stars-Bryce and Annalise

3-year-old Annalise and 5-year-old Bryce have a rare form of Leukodystrophy, an incurable neurological disorder that limits the body’s ability to function by interrupting signals from the brain. When Bryce was diagnosed and then later Annalise, Tammy and John Clayton had to quickly adjust their lives to manage their conditions and 24/7 care while still managing to maintain the needs of their three older children. A stay at Ryan House gives the Claytons a chance to share time as a family without having to worry about giving medicine or preparing special foods.

“The Care Team takes over Bryce and Annalise’s care,” Tammy said, “I can spend time snuggling and playing with Bryce and Annalise as a mom instead of caregiver. Ryan House has also helped our older boys realize that they are not alone in having siblings with special needs. John and I have also become very close friends with some of other parents that we have met.”Annalise loves the playground and the fact that she is able to go up on it in her walker all by herself. Bryce loves to be outside and chase his brothers as they ride the power cars around the playground. They both love the dogs that come to visit, the pool and the sensory room. 

Links:

Jul 30, 2013

Ryan House Shining Star- Cade & Colby

Cade and Colby have Duchenne Muscular Dystrophy, a weakening and deterioration of the muscles. With your heart and respiratory system being a muscle and your spine requiring muscles to hold it up, the 11-year-old twins have bodies that just cannot keep up. Starting out as active kids, who crawled until they walked and walked until they ran, they have also witnessed their older brother, Ethan, endure and pass away from the same condition at 25-years-old. Shortly, after his death, the twins found a message from Ethan giving them advice on how to get through this. Sadly, each time they listen, things become clearer. "Learning about Ryan House was a huge emotional release for me," mom, Amy said. "Before Ryan House, some days were dark and scary but now I have a ray of hope. With just two days rest I know I can go on and do anything."

Apr 26, 2013

Ryan House Shining Star- Trinity

Trinity
Trinity

Meet our Ryan House Shining Star, Trinity

Shortly after learning she was pregnant with triplets, Heather was told her three children, Sebastian, Trinity and Estellah, had only two placentas. At 28 weeks, Estellah passed away in utero and Trinity began having strokes and her kidneys stopped developing. While Sebastian was born healthy at 35 weeks, Trinity was diagnosed with Cerebral Palsy and terminal renal failure with a life expectancy of 15 months.

“The day I stepped into Ryan House is the day I became a woman again,” Heather said. “When you have a child with special needs you not only become a nurse and caregiver but also an advocate, making all the hard decisions. Now a single mom, I don’t have someone to talk to or share things with. Ryan House has given me the security and confidence to go forward. We are progressing every day, hopefully there will be no more cloudy days but if there are, well, it’s ok.”

When Trinity is at Ryan House she loves spending time in the sensory room with volunteers.  You can also find her strolling the halls and the fully accessible playground.  

Links:

An anonymous donor will match all new monthly recurring donations, but only if 75% of donors upgrade to a recurring donation today.
Terms and conditions apply.
Make a monthly recurring donation on your credit card. You can cancel at any time.
Make a donation in honor or memory of:
What kind of card would you like to send?
How much would you like to donate?
gift Make this donation a gift, in honor of, or in memory of someone?

Reviews of Ryan House

Great Nonprofits
Read and write reviews about Ryan House on GreatNonProfits.org.