Multiple Sclerosis Trust

The MS Trust's mission is to make a real difference for people with MS through the provision of information and professional education, by funding practical research and by campaigning for the improvement of MS services. We work to the highest possible standards and actively seek opportunities to work with other organisations to provide real benefit for people with MS.
Dec 1, 2011

Our work with MS nurses continues

Our work with MS specialist nurses is ongoing and our ultimate goal is to ensure that everyone with MS, whatever their circumstances, has access to quality healthcare. The network and resources that the MS Trust offers to health professionals working with people with MS is unique. Every MS nurse knows that they can turn to the MS Trust if their service is under threat, and for their own professional education and development, as well as to access information that is up to date, timely and well researched.

Last month, around 350 specialist nurses, therapists and other health professionals attended the MS Trust’s 15th Annual Conference. This is a key event for MS nurses every year and the only place where they can come together with such a wide range of other professionals working in MS. Our conference gives them the chance to share experiences and learn about the latest developments, as well as giving us a great opportunity to learn more from the nurses about what support they and their patients need for the future. 

"This year's conference was excellent. It helped to refocus my mind following a very difficult 9 months of restructuring at work" MS Nurse who attended our Annual Conference

It is only thanks to the funds raised from generous donors, like you, that we are able to continue working so hard on behalf of every MS specialist nurse. For every MS nurse we can support, the benefits will roll out to hundreds of people with MS and their families. 

Thank you again for donating to our MS Nurse Support Programme and I look forward to keeping you updated on our progress.

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Sep 15, 2011

Helping people with MS get the information they need

With more than 50 people being diagnosed with MS every week in the UK, and with new treatment options developing all the time, the MS Trust’s information team is receiving more enquiries than ever before. Enquiries are up 16% on this time last year.

People contact us by phone, email, post and even via Facebook and Twitter to ask all kinds of questions about life with MS. Sometimes we can answer straight away; sometimes we will need to do some additional research, but either way we will find them the information they need, based on the latest evidence available.

The MS Trust is the only place that offers a service like this and we have recently been certified with The Information Standard from the Department of Health to acknowledge the quality of the information we provide. Good information has been shown to increase confidence and involvement in making decisions, reduce isolation and anxiety, and improve clinical outcomes.

Thank you for supporting this service, which makes a real difference to the lives of people with MS.

“The MS Trust has opened up a world of information and contacts. You feel welcome whatever your issue or question. At times MS can be extremely hard on every family member, however the Trust's Open Door newsletter always sat on the table, looking quite dog-eared by the time the next one comes along. Thank you for being there.” Naomi-Jane, who was diagnosed with MS in 1998

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Sep 2, 2011

Update on our work with MS Nurses

MS Specialist Nurse
MS Specialist Nurse

Thank you to everyone has who has donated towards our MS Nurse Support Programme, we have been busy putting your donations to work.

We have carried out research which proves that specialist nursing for people with MS varies widely across the country - the quality of support you get depends on where you live. We have been aware of this situation for some time, but in order to bring about change, it is vital that we have the evidence to back it up. Thanks to all our donors, we now have that evidence in place. 

As well as putting us in a much stronger position for campaigning, your donations are helping to fund one on one crisis support for MS nurses across the UK right now.

Many nurses are working alone with limited funding, limited resources and with excessive numbers of patients. So far this year we have supported around a dozen nurses whose services were on the brink of collapse. Having someone to back them up and help them fight for funding can really make the difference and help to turn things around for their patients. That is the support that our MS Nurse Advisor provides, a role which is partly funded by donations to our appeal.

We have made progress and, with your support, we will keep working to ensure everyone with MS has access to the best healthcare.

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