Multiple Sclerosis Trust

The MS Trust's mission is to make a real difference for people with MS through the provision of information and professional education, by funding practical research and by campaigning for the improvement of MS services. We work to the highest possible standards and actively seek opportunities to work with other organisations to provide real benefit for people with MS.
Sep 5, 2014

Having questions is good. Having answers is even better.

Living with MS can generate lots of questions.

Being diagnosed generates the first batch.

The list can be very long. Getting your head around being diagnosed can take some time and be a bit of an emotional rollercoaster. More questions…

Perhaps, later on, symptoms kick in that you haven’t experienced before. Even more questions…

Perhaps you’ve got a review coming up with your MS health professionals. It’s a good opportunity to ask questions but…

Thanks to donors like you, the MS Trust can help

We have information you can trust including a brand new suite of resources called Making Sense of MS for people who are newly diagnosed with MS. 

We have an A to Z of MS on our website. This is a great way to begin understanding symptoms, exploring treatments options and living well with MS.

The MS Trust's Information Team is here to answer questions from anyone affected by MS on freephone 0800 032 3839 or email infoteam@mstrust.org.uk

The MS Trust is on social media including Facebook and Twitter.

Thank you for supporting the MS Trust and helping us to provide these vital information services for people living with MS.

Links:

Sep 5, 2014

Significant shortfall in the number of MS nurses

MS Trust report suggests another 126 MS specialist nurses needed in the UK

In March and April this year we carried out a survey of every MS nurse in the UK. The response was amazing - over 97 per cent of nurses responded. But the results were disappointing.We found that we don’t have nearly enough MS nurses to care for the more than 100,000 people in the UK living with MS.

We found that there are 245 MS specialist nurses in the UK and on average they support 550 people with MS. The recommended caseload is closer to 300. We estimate that we need at least 126 more MS specialist nurses to provide an acceptable service to people with MS.

Over the last 21 years we have campaigned for and supported the growth of MS specialist nursing. However, we are concerned that ongoing changes in the NHS could leave MS specialist services under threat. We hope this report is a timely reminder to NHS managers that we need more not fewer MS nurses.

In the upcoming months we will look more closely at the challenges facing UK MS specialist nursing. We will also analyse the regional variations in more detail so we can identify the areas where we don’t have enough MS nurses.

Thank you for supporting this project and helping us to fight for specialist nurses for people with MS.

Links:


Attachments:
May 29, 2014

21 years supporting MS Nurses

MS Nurse Consultant Karen Vernon
MS Nurse Consultant Karen Vernon

This year the MS Trust is marking its 21st anniversary and as part of our 21 Stories project we asked Karen Vernon, MS Nurse Consultant in Salford and one of the early MS specialist nurses, to reflect back on some of the big developments for people with MS over the past 21 years.

In my mind, without doubt the biggest achievement over the past 21 years has been the development of specialist practitioners in MS, whether this is a neurologist, nurse or an allied healthcare professional. This has enabled the safe delivery of the disease modifying treatments to some patients, but ultimately more patients with MS have had expert care independently of whether they are on drugs or not, often from a multidisciplinary perspective. This has also acted as a catalyst for specialist networks which enables sharing of best practice, again enhancing care for all.

The support from the voluntary sector has been crucial in this. The involvement of the MS Trust in providing specialist education for practitioners has been invaluable. Very few specialist nurses in any field have the ability to undertake a development module such as the one the MS Trust runs, which enables them to have a foundation for practice. The MS Trust continuing support to specialist practitioners cannot be underestimated.

I think the biggest challenge for the next 21 years will be in maintaining and further developing services to reflect changing needs, both of people with MS and also the varying demands of the different drugs coming to license. The demands on the health service cannot be underestimated and it is essential that we do not allow MS services to become all about the drugs, and that we offer an equitable service to all people with MS.

I also think a major challenge will be the loss of a significant percentage of specialised practitioners' expertise through retirement. Succession planning is crucial in all aspects of the service and, again, the involvement of the voluntary sector in education is paramount, in order for services to continue to deliver high standards of care. How this is developed will again need to reflect changing needs within the healthcare community.

Karen Vernon, MS Nurse Consultant

The MS Trust works tirelessley to support the MS nurse workforce in the UK and with the help of donors like you, we will continue to do so, to ensure everyone with MS has access to the services they need. Thank you for your support.

Links:

donate now:

An anonymous donor will match all new monthly recurring donations, but only if 75% of donors upgrade to a recurring donation today.
Terms and conditions apply.
Make a monthly recurring donation on your credit card. You can cancel at any time.
Make a donation in honor or memory of:
What kind of card would you like to send?
How much would you like to donate?
  • $10
    give
  • $23
    give
  • $57
    give
  • $275
    give
  • $10
    each month
    give
  • $23
    each month
    give
  • $57
    each month
    give
  • $275
    each month
    give
  • $
    give
gift Make this donation a gift, in honor of, or in memory of someone?