Multiple Sclerosis Trust

The MS Trust's mission is to make a real difference for people with MS through the provision of information and professional education, by funding practical research and by campaigning for the improvement of MS services. We work to the highest possible standards and actively seek opportunities to work with other organisations to provide real benefit for people with MS.
Mar 3, 2015

We need MS specialists at the heart of MS care

Heart of MS care
Heart of MS care

At the MS Trust, we believe that people living with MS deserve the best possible care.

That’s why we’re launching a new campaign to make sure everyone affected by MS can get access to MS specialists (that is, specialist nurses, as well as physiotherapists, occupational therapists and other health professionals with expertise in MS). But we need your help to continue our work.

“I was signed off work. I was in a really bad place. And then I met an MS nurse. It was like someone had opened a window. The reassurance!”

Showing the difference MS specialists make for people with MS

Through our innovative national GEMSS programme, we’re working with MS specialists and developing new tools to help them show managers and commissioners how they offer the best, most effective care for people living with MS. As part of GEMSS, we are running a national survey service and are gathering the views of thousands of people with MS about how specialist care makes a difference to them. By supporting our campaign, you’re helping us to make the case for specialist MS care.

Training and supporting MS specialists to provide the best possible care

We train every new MS specialist nurse in the UK, making sure they can deliver the best possible care for everyone affected by MS and we offer a full range of training and support for physiotherapists and occupational therapists to gain expertise in MS. We also provide additional training as well as support and resources to make make sure all MS specialists stay up to date with the latest developments. By supporting our campaign, you can make sure we can continue this work.

Changing national guidance

We are disappointed that the new national Guideline for MS doesn’t go far enough in highlighting the importance of MS specialists. We want NICE, the national body that provides guidance to improve health and social care, to recognise the importance of MS specialist nurses as well as physiotherapists and occupational therapists with special expertise in MS. We want to raise the profile of these roles, help build the evidence for their value and to get NICE to acknowledge the difference that their services make. By signing up to our campaign, you’re adding your voice to this call.

Find out more about our Heart of MS Care campaign on the links below.

Links:

Mar 3, 2015

Practical information you can trust

In 2014, thanks to support from donors like you, our information team answered more enquiries than ever before, and produced resources tackling some of the trickiest MS issues.

In 1993 there was very little practical information to help people deal with MS. Today there is almost too much. Type “multiple sclerosis” into your phone, tablet or computer and you will find over 35 million web pages claiming to give you the answers.

At the MS Trust we pride ourselves on providing practical, evidence-based information, tailored to the needs of people living with MS. In 2014 we were once again accredited with the Information Standard kitemark, which lets people know that when they look at our website or pick up our books and factsheets, they’re reading MS resources they can trust.

We’ve always focused very much on providing information that can make a practical difference today, helping people living with MS make the choices that can help them live life to the full. In 2014 we published two new guides to dealing with MS bowel and bladder problems. These are very common in people with MS and are often simply treated. However, if they go untreated - because people are uncomfortable discussing them, or don’t connect them with their MS - they can have serious consequences.

We’ve seen how much people with MS, and their MS specialist nurses and therapists, value our information with a record-breaking year. In 2014 we sent out over 67,000 books, factsheets and DVDs – that’s up from almost 50,000 in 2013. 75 per cent of our publications are ordered by MS specialist health professionals. They know that they can rely on MS Trust resources to be clear, reliable and useful for the people with MS they care for.

Our website received over 3 million page views in 2014, while the number of visitors went up by almost 40 per cent.

Thank you for helping us continue to support people affected by MS.

Links:

Sep 5, 2014

Having questions is good. Having answers is even better.

Living with MS can generate lots of questions.

Being diagnosed generates the first batch.

The list can be very long. Getting your head around being diagnosed can take some time and be a bit of an emotional rollercoaster. More questions…

Perhaps, later on, symptoms kick in that you haven’t experienced before. Even more questions…

Perhaps you’ve got a review coming up with your MS health professionals. It’s a good opportunity to ask questions but…

Thanks to donors like you, the MS Trust can help

We have information you can trust including a brand new suite of resources called Making Sense of MS for people who are newly diagnosed with MS. 

We have an A to Z of MS on our website. This is a great way to begin understanding symptoms, exploring treatments options and living well with MS.

The MS Trust's Information Team is here to answer questions from anyone affected by MS on freephone 0800 032 3839 or email infoteam@mstrust.org.uk

The MS Trust is on social media including Facebook and Twitter.

Thank you for supporting the MS Trust and helping us to provide these vital information services for people living with MS.

Links:

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