Casting 4 A Cure, Inc.

Casting 4 A Cure helps raise critical funds for research and family support for those affected by Rett Syndrome, a debilitating neurological disorder that affects 1 in every 10,000 girls. Our goal is to help researchers find a cure by 2018. And with your help, we can get there!
Jul 18, 2012

Casting 4 A Cure update -July 2012

Hello everyone, hope you are having a great Summer!  

We are really looking forward to a great year in 2012 with respect to helping fund critical research projects for Rett Syndrome.  All of our 2012 Casting 4 A Cure events are currently sold out and we are at maximum capacity!  Great news as this should really help us hit our fiscal goals this year of donating $100,000 to the International Rett Syndrome Foundation.  So far  this year we have donated $30,000 to the International Rett Syndrome Foundation.

We will concentrate our efforts on funding the 1st phase of the clinical trials for the drug NNZ-2566 (http://www.rettsyndrome.org/content/view/848/1147/) which are being held in conjunction with Children's Hospital in Houston.  Neuren Pharmaceuticals has joined with the Baylor College of Medicine to test NNZ-2566 in a proposed Phase I and Phase IIa clinical trial. This proposed trial, along with the IGF-1 trial at the Children’s Hospital in Boston, are trials designed to investigate whether these compounds can reverse some of the symptoms of Rett syndrome and modify the progression of the disorder in our Rett children. This announcement portrays the importance of partnerships between industry, academia, and private foundations like IRSF to accelerate bringing forward clinical trials specific to Rett syndrome. 

Thank you again for your support!

Bill

Links:

May 3, 2012

Casting 4 A Cure- 2012 Outlook and Projects

Hello everyone, hope you are having a great Spring!  

We are really looking forward to a great year in 2012 with respect to helping fund ciritcal research projects for Rett Syndrome.  All of our 2012 Casting 4 A Cure events are currently sold out and we are at maximum capacity!  Great news as this should really help us hit our fiscal goals this year of donating $100,000 to the International Rett Syndrome Foundation.

We will concentrate our efforts on funding the 2nd phase of the critical EGF1 Growth Hormone clinical trials which are being held in conjunction with Children's Hospital in Boston.  The first phase of the trials have shown some very positive results and we are looking forward to seeing what the second phase has in store.

Thank you again for your support!

Bill

Jan 3, 2012

Casting 4 A Cure 2011 Year End

Hello all, I hope you and your friends and family had a very Happy Holiday season.  We have been so blessed this year with the incredible generosity of our donors in 2011.  Casting 4 A Cure exceeded our overall 2011 goal of raising over $150,000 for Rett Syndrome Research and support.  We were so excited to be able to fund some incredible projects with your help.  We have a list below of some of the highlights.  

  • We were able to donate over $110,000 to the International Rett Syndrome Foundation to fund numerous critical and cutting edge research grants and family support programs.
  • We donated $12,500 to Denver Childrens Hospital to help start the Rocky Mtn. Rett Syndrome clinic
  • We were able to help pull Rett Syndrome families together in the Northwest by funding the Northwest Rett Syndrome Family Symposium.
  • We raised awareness of Rett Syndrome to thousands of individuals.

We have set some aggressive goals for 2012 as well, with a target of raising $175,000.  We are so happy and grateful for your partnership and looking forward to partnering with you as we get closer to a cure for Rett Syndrome.

Sincerely,

Bill Farnum

Links:

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