Discovery Eye Foundation

The Discovery Eye Foundation created the Macular Degeneration Partnership program to raise awareness of age-related macular degeneration (AMD), educate patients about the disease and provide support and resources to them and their families. The overall mission of Discovery Eye Foundation is to support research, education and advocacy related to sight-threatening eye diseases and their treatments, improving the quality of life for patients and their families.
Aug 9, 2011

Hope for People with Macular Degeneration

Grandmother and child
Grandmother and child

One of the most important things your donation helps us to do is the AMD Update. This free monthly email goes to thousands of people with age-related macular degeneration (AMD) and to their family members.  

Macular degeneration is a frightening condition with no cure - and only 10% of people are able to get treatment.  The newsletter accomplishes so much for those we serve.

It reminds them to keep checking their vision for changes - if they do develop wet macular degeneration, we do have treatments that can save their sight!

It keeps them up to date on all the research, which is very hopeful.  There is a new therapy for wet AMD that the FDA should approve this month, that will reduce the number of eye injections people need.

For the majority of AMD patients with dry macular degeneration, the research news is very exciting.  With AMD Update, we keep them up to date on promising potential treatments, including a medication by mouth and the use of daily eye drops that may prevent progression and even reduce the damage.

For someone facing severe vision loss, hearing these hopeful messages, as well as gaining practical advice, makes all the difference in the world.

Thank YOU for making a difference to the life of a senior with macular degeneration.

Links:

May 17, 2011

Free Vision Symposium

Vision Symposium
Vision Symposium

All our services and materials for patients and their families are free, in part because of YOUR support!

On May 14, Discovery Eye Foundation presented the 2011 Vision Symposium in San Diego, CA.  It was a large and warm gathering of eye doctors, researchers, patients and family members.  Sessions included a presentation on the future of cataract surgery as it affects people with other eye conditions and an update on our research at the Gavin Hebert Eye Laboratories at the University of California, Irvine.

Following that session, attendees had the opportunity to choose from talks on Age-Related Macular Degeneration, Glaucoma and Keratoconus.  We were fortunate to have leaders in the field come out on a Saturday morning to share their knowledge.  Dr. Michael Goldbaum, from Scripps Eye Institute, brought people up to date on what we know about AMD, the treatments available and how lifestyle changes can slow vision loss.  Dr. Paul E. Tornambe, also from Scripps, gave a hopeful presentation on the latest research, including therapies that may become available in the next year or so.  These include something for dry macular degeneration, which has no treatment at this time.

Dr. Avani Patel brought her skills as a low vision specialist to share with the audience the variety of devices available to help low vision and also tips and tricks on managing daily activities despite limited vision.

During the conference, exhibitors of useful devices and services were available to demonstrate digital magnifiers and let people know about resources available to those with vision loss.

Having this information can change people's lives and we can do it, thanks to YOU!

Henry J. Klassen, MD
Henry J. Klassen, MD

Links:

Feb 17, 2011

Thank You for All You Do

AMD Patient
AMD Patient

It's a new year here at the Macular Degeneration Partnership and new opportunities to make a difference to seniors and their families.

We'd like to start the year by saying "thank you" to all our members and supporters.  You've helped us to reach more people at risk for macular degeneration and to help those who are struggling with vision loss.  We appreciate all you do!

Early 2011 is full of opportunities and we'll be very busy.  We are once again partnering with Braille Institute, bringing presentations on macular degeneration to communities in Southern California.  There are 5-7 of these sessions every month, reaching hundreds of people.  At every meeting, there are always people who didn't know that AMD can be genetic and that their family members are at risk.  We're able to give them healthy lifestyle recommendations for their adult children and siblings - information that may delay the onset of macular degeneration vision loss.  At a recent senior center event, several people said it was "...the best talk we've ever had...!".  That's the kind of comment that keeps us going!

In May, Discovery Eye Foundation will bring the Macular Degeneration Partnership to San Diego for a Vision Symposium.  In addition to hearing physician experts on AMD, attendees will be able to try out assistive devices and learn about free services available in the community.  Folks really appreciate being able to ask questions directly from retinalogists and low vision specialists.  They'll be getting an update on the exciting research currently underway for treatments for both dry and wet AMD.

One of the best things we offer is our  toll-free "warm line" for patients and family members.  We spend a lot of time on the phone, answering questions, clearing up confusion about vitamins and treatment, providing local resources and just being there to listen.  Inevitably, we hear from callers, "I just learned more from you on this call than in years of searching for information.  I feel so much better having talked with you!". 

Read the current newsletter for research information and tips on living with low vision.

Links:

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