miraclefeet

Approximately 1 million children in the world live with clubfoot, making it one of the most common congenital birth defects. Clubfoot not only results in a life of disability, but also a dramatic decrease in earning potential, which almost certainly results in an impoverished life. Clubfoot is a curable disease, and thanks to the Ponseti Method, now considered to be the gold standard in clubfoot treatment, it can be treated without invasive surgery and at very low cost. miraclefeet partners with Ponseti International and organizations like CURE International to establish clubfoot clinics in some of the most impoverished regions of the world. At miraclefeet we are dedicated to providing free ...
Oct 7, 2013

Program Update: Liberia for FY 2013

Director of FACORC with two babies with clubfoot.
Director of FACORC with two babies with clubfoot.

miraclefeet’s partnership with Faith Clinical Orthopedic Rehabilitation Center (FACORC) in Liberia began in August 2013 after Dr. Augustine Chiewolo received training from Ponseti International Association (PIA) in Iowa. miraclefeet funds most of the operating costs of the FACORC clubfoot program, although the FACORC team generously volunteer their time. 180 children have been enrolled in treatment since miraclefeet started providing financial support to FACORC. Two trainings by PIA-endorsed providers were held for health care workers and lay advocates and discussions have been held with at least 5 hospitals and clinics to create additional satellite clinics around the country. FACORC provides extensive community outreach program via radio publicity, newspaper articles and the training of community outreach workers. FACORC recently engaged in discussions with government officials from the Ministry of Health and Social Welfare and received positive responses for developing a national program. The plan is to open three more rural clinics over the next year. We estimate that over 1,000 children total are living with untreated clubfoot in Liberia. We want to make that number a ZERO!

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Oct 7, 2013

Allan in Nicaragua

Allan playing w/ a balloon at the clubfoot clinic
Allan playing w/ a balloon at the clubfoot clinic

Allan was the second patient at the miraclefeet-supported clubfoot clinic within the public hospital in Leon, Nicaragua. He came in for casting for the first time in May 2012. Our U.S. staff had the chance to meet Allan and his parents at the Leon clinic this month. His mom told us she had researched the Ponseti method after taking Allan to a doctor at a different hospital who was doing short casts on him. She felt they were not correcting his clubfoot and that the doctor she had been going to must not have been trained in Ponseti, the gold standard treatment for children with clubfoot. She soon found out about the miraclefeet-supported clinic at the public hospital and brought him there instead. Allan is now nine months old and is lively, smiley and on his feet!

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Aug 1, 2013

Parent Text Support Program Kicks Off in Nicaragua

Last week we held the first meeting for our new parent text messaging program, Step by Step – Paso a Paso - at Hospital Velez Paiz in Managua, Nicaragua. Thirteen families are participating in the test of the system and we held a focus group in order to get their input on its initial design. The families are very excited about testing the program. Many have expressed feeling isolated and alone during parts of their child’s clubfoot treatment and they are pleased that they and other parents are now receiving support and information to help them navigate their child’s long-term treatment. Our miraclefeet program manager, Lauren Wall, is working with Mackensie Yore of Stanford University, who designed the project, and NC State University student Taylor Craig, the miraclefeet intern who has been managing the project. Here are a few quotes about the project from the parents who participated and some photos of the focus group:

  • “When I [first] saw her feet, I never thought this would be possible. Now they are so straight."
  • “Thank you for doing this. Before, there was no information about clubfoot."
  • “When can we do this again?"
  • “The text messages were a great motivation for me, to give me encouragement to keep going."
  • “I would tell [other] new moms with children with clubfoot, be strong!"

We are thrilled to measure the success of this new component of the parent support program and to help bring it to our partner clinics across the world.

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